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Alia02

Oh no Karen that's not fair! Yes I definitely think Gin and withdrawl are a bad combination so I will have to step away from alcohol for a while...Yes pulling out of it...thanks :)

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Songbird

I had to avoid alcohol completely for a long time.  Once I became more stable, I was able to have a glass of wine with dinner, but as I've hit a rough patch recently I've stopped the alcohol again.  Luckily I don't seem to react to chocolate - that's a bummer about the chocolate muffin.

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Alia02

Thanks for the above KarenB. Yes not justice when chocolate can have that effect! Feeling much better now and am probably going to cut gin out for the rest of my life such was the effect! I also go to a book club and feel quite envious of those who can have wine three or four times a week. I can manage a small glass once a week and thats only if Im in compnay. Im predicting even that will go soon...its just that it makes me feel much worse the next day. Oh well. Great to be feeling better. 

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KarenB

Hello fellow Kiwis,

 

Anyone heard from MollyN at all?

 

She was very regular here, and then I haven't heard from here since Christmas.  Probably she's just got things sorted and is out enjoying life, but I'd like to know.

 

And so I also thought I ask that if anyone else is ready to leave s/a behind, it'd be great to see a post in your thread or here so we don't worry...

 

Thanks,

I always feel a bit closer to all you kiwis,

Karen

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nz11

"Read and his team have studied 1800 New Zealanders taking antidepressants, most of which were the Prozac type, and found that more than half got psychological symptoms on stopping taking their drugs. The risk of this happening can be reduced by tapering off use of the drug gradually, although in some cases this takes months or even years. One former user of antidepressants at the meeting said his symptoms had lasted for years."

 

This was a paragraph taken from

https://www.newscientist.com/article/2087949-high-antidepressant-use-could-lead-to-uk-public-health-disaster/

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Alia02

Help! My withdrawl has gone whatsit! I wrote on my personal page about it but no one replied. I dont quite understand when you use your personal page and when you start a new topic? Ive it a roadblock with decreasing seroquel and can I make a new thread about Seroquel withdrawl? ( I cant much about it on the site) Also, who has used pharmaceutical. co. nz and do you find it easier than making up a liquid medicine yourself? Thanks. I feel like Im going demented. How do you explain to your boss that withdrawl from a medicine is causing you major work issues? I might have to resign...

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KarenB

Hi Alia,

 

Sorry no one answered on your own page - sometimes we miss things if it gets busy (so many new members lately).  Generally, if you are writing about your specific situation then it goes in your own thread.  If it's a general comment about something then it can go in another thread (always search first to see if there's an appropriate thread already in existence - if you don't find one, then you can start one). 

 

So keeping your Seroquel questions/experiences in your own thread is best.  I'll have a look on your thread now. 

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Alia02

Thanks guys. Literally I think Im insane. I literally count count! Have spent ages calculating doses and I cant even frigging cut by ten per cent. I think I'll get my husband to check my cuts from now on. It all makes sense now. Ill take your advice Karen ...go up and hold for a while. Thanks. I was doubling it to 20% as I was never very good at maths and I thought 10 was double what it was. Very embarassing but true. I need another pair of eyes so will get my husband to help. Thanks.

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ang

Kinda makes me want to move to Australia - just reading those words felt amazing.  People taking it seriously!!  A very classy class action. 

Hi Karen I felt like that for a long time, that I lived in Australia, and people were suing in USA.   No lawyers in USA would help.   I am kind of glad it worked out that way,    as none so far are winning in USA,  but they will.        So by the time Australia sues, for this,  hopefully we might have a win.          Either way, it is the publicity that is important to me,  no money will ever bring back my zoloft baby, or bring back my marriage, or home, due to effexor damage.          Anyhow, by the time NZ sues,   the lawyers will have all the backup information already from USA, and Australia.

 

Anyway,  hope you dont mind me on your thread Kiwis!   I love NZ, so I hope you dont mind adopting me, just for a few posts on your thread!

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ang

Just emailed Drayton Sher lawyers in Australia to offer my services to assist with their class action (i'm admitted as a barrister & solicitor - not practicing currently) felt good to do something however modest :)

Hello Molly,  I act as a researcher for them.            I send them up to date reports,   the main thing they need is references to anyone who has won such a law suit.                I worked in pathology, and chemical analysis, before these damn drugs.    So I like to do what I can to help them.  I am sure Tony at Drayton Sher could do with your help.                    He is the only lawyer I know of,  that is allowing poor people, who cant pay him, to be a part of the process.

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ang

Help! My withdrawl has gone whatsit! I wrote on my personal page about it but no one replied. I dont quite understand when you use your personal page and when you start a new topic? Ive it a roadblock with decreasing seroquel and can I make a new thread about Seroquel withdrawl? ( I cant much about it on the site) Also, who has used pharmaceutical. co. nz and do you find it easier than making up a liquid medicine yourself? Thanks. I feel like Im going demented. How do you explain to your boss that withdrawl from a medicine is causing you major work issues? I might have to resign...

Hi Alia,  I am giving up the last med,  seroquel,   I originally thought it wouldnt be difficult, as it was orginally prescribed off label (hahaha!)   as a sedative as effexor gives horrible sleeplessness and nightmares.       Anyway I am doewn to 36 mg, and get tablets compounded, which isnt cheap.                   I had no idea they could do liquid seroquel,   do you have more information?

 

Yes as I go down, and even still being on the stuff,   half the time I feel completely nuts!  My brain is only just clearing now................                       But that is horrible, as I now realise what these poisons have done to me.    I have no motivation, no energy,   no enjoyment of anything, except the computer at present!  I guess that will pass.    I have only been on this AD withdrawals shocker for 18 months now.                  Yes, I am improving, but not quick enough :)

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nz11

 

Just emailed Drayton Sher lawyers in Australia to offer my services to assist with their class action (i'm admitted as a barrister & solicitor - not practicing currently) felt good to do something however modest :)

Hello Molly,  I act as a researcher for them.            I send them up to date reports,   the main thing they need is references to anyone who has won such a law suit.                I worked in pathology, and chemical analysis, before these damn drugs.    So I like to do what I can to help them.  I am sure Tony at Drayton Sher could do with your help.                    He is the only lawyer I know of,  that is allowing poor people, who cant pay him, to be a part of the process.

 

Go Drayton Sher lawyers .

Spent the afternoon today walking and driving around different pharmacies in two suburbs giving them a copy of the D S Lawyers 2015 press release asking if they would consider giving a copy to all patients on their books taking these drugs because anything less would be uninformed consent right? I wondered if they just throw it in the bin as soon as i leave. But one chemist said oh our other office has it on their notice board already....thats because i gave their sister office a copy a few days ago. So its good to see its not going straight in the bin.

 

Ang my understanding is us West Islanders are welcome to pop in anytime.

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Alia02

Thanks Ang. Wow you are doing amazing on your decrease but sorry it has had such a hard effect on you. yes Seroquel I too, thought it would be the easiest one. No...it feels very weird cutting too much so I have gone back up a bit.Worse than my anti depressant withdrawls. I feel groggy now but saner. Will hold for a while. Ummm I dont really know what Im talking about with the liquid Seroquel. I think I might have imagined it! Anyway Im contacting the pharmacists in NZ tomorrow to see if they can, so I will let you know. take care :)

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KarenB

Ang you are very welcome.  We only charge a small extra fee for Aussies, as noted in the small print :).

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nz11

Scales for weighing

 

A fellow kiwi doing a very slow taper recommended some scales to me so i thought i would share it here:

He says:

................................//....................

The actual purchase was made through a seller on Amazon. 

Here's a link to the digital scales I have:

http://www.americanweigh.com/product_info.php?products_id=2116

 

For delivery,
I went with a combo of

1. free shipping within US

2. NZ Post YouShop service to bring out to NZ

 

Some info on YouShop here:https://www.nzpost.co.nz/tools/youshop

 

I'm very happy with the scales & find it helpful having the accessories that came with them.

 

American Weigh Scales also do a more economically priced version:

http://www.americanweigh.com/product_info.php?products_id=580

 

................................//........................................

.American Weigh GeminiPRO Digital Milligram Scale 20g x 0.001g

[Remember 0.001g is the same as 1mg ]

GPR-20_main.jpg

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Alia02

Thanks nz11. Was wondering where to get my hands on these.

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nz11

Been busy writing letters as you do....thought i'd share one, ....I borrowed an idea or two from Whitakers Anatomy book, a Brogan-ism and a Healy-ism or two!

 

This was given to my local Member of Parliament and although no one will believe me a few days later Whitaker gave a talk to the UK parliament on a very similar theme. Copies were sent to major media centres including TV stations, respected journalists, Fairgo and NZ Listener as well as CARM and Pharmac.

 

Anyway my 4 years complaint (exhausting every avenue possible to complain to) process has now come to an end so i am finishing off with a letter to my MP. Probably wasted my time..but i tried...

 

Can i ask NZ members if you have not as yet written to your local member of parliament would you seriously consider doing so.

...........................//............................................

 

Local Member of Parliament

 

Dear Local Member of Parliament,

I believe we are currently witnessing in this nation a silent unprecedented and underestimated tragedy of epidemic proportions in health care. It’s regarding one of medicines dirtiest little secrets, in being told that antidepressants are safe, effective and not addictive, they are in fact anything but. Something needs to be done to help people get off these terrible chemicals.

 

 In 2012 we had approx. 420,000 people in this country on these dreadful poisons a doubling of the iatrogenic addicted numbers from only 6 years prior and let’s not forget, no one was on an SSRI back in 1988. Heaven knows what this figure is in 2016.

 

Fraudulent drug trials only went for one month so anyone taking these chemicals for longer is a participating guinea pig in a chemical experiment. Yet we are seeing people taking these drugs for many years!!

 

The medical profession needs help in knowing how to get people OFF these drugs safely. Manifesting symptoms of abstinence are erroneously used to blame and label the patient who in fact is suffering NOT from a flawed nature but from horrific drug withdrawal which in many cases can last for years, with symptoms often delayed for weeks or months.  

 

The work of Kirsch has revealed these chemicals are worse than useless. Yet it’s all been hidden. It’s a miracle I am still alive after what I have had to go through to break free of an off-label iatrogenic drug addiction. These drugs have taken addiction to a whole new galaxy and pharma have lied about it.

 

I attach recent documentation in respect of a complaint against my ex-doctor. In particular consider the statements from world authorities in light of the current numbers drugged, it’s frightening.

 

I also draw your attention to the class action suit by Drayton Sher Lawyers in Australia and their attached press release in 2015.

 

The Government desperately needs to improve oversight of the relationship between the pharmaceutical industry, doctors and the regulatory agencies and putting an end to and/or blocking/removing funding from organizations pushing falsehoods and delusional (chemical imbalance) myths. (I notice you are already removing funding for some and I applaud you for it).

 

Just consider Kirwans ‘depression’ (whatever that is) website. The public are being betrayed and mislead for they cannot be expected to be able to distinguish between scientific fact and marketing Blatant Silliness (BS). Much is at stake. People’s lives!

“He who would do a great evil must first of all convince himself he is doing a great good” (Gandhi).

 

We could start by stopping the DTC TV advertising ‘Just ask your doctor if venlafaxine is right for you.’ People are being herded into a horror story scripted by a pharma-indoctrinated doctor and are totally oblivious to the fate that awaits!  Secondly ban all new prescriptions of ssris/snris. Thirdly rescue and free those currently held hostage to them - not an easy task. Set up iatrogenic addiction withdrawal clinics.

 

If doctors continue the druggery at the current (to 2012) rate then putting this in perspective, this is the equivalent of the Aotea Centre being filled to capacity (2,139 people)  every 3.2 weeks with newly (SSRI) drugged (iatrogenically harmed) people.  .. this is a shameful national disgrace!

 

If independent non pharma funded research is correct ie long term outcomes on these chemicals is a worsening in all measures with people being left disabled, impaired and very ill then we would expect to see disability rates tracking upwards correlated with the soaring numbers of those ssri-drugged. 

 

Question: Is this in fact the case?

Answer:   What do you think? ……………………………………………………………………………………………………………PTO

 

 

Back Page

 


[The image of a graph of soaring psychiatric disability rates in NZ since the introduction of ssris was shown but image cant be uploaded here so just believe me in that it was a line graph tracking upwards, from 10,000 in 1991 to 50,000 in 2010].

 

All classes of psychiatric drugs can cause brain damage and lasting mental dysfunction when used for months or years. Although research data is lacking for a few individual drugs in each class, until proven otherwise it is prudent and safest to assume that the risks of brain damage and permanent mental dysfunction apply to every single psychiatric drug.  (Breggin, 2014). “These drugs are immensely harmful.” (Gotzsche, 2013). Claims made by drug companies about antidepressant drugs are deceitful and research fraudulent. (Scott, 2006).

 

I recently had the privilege and honor of being allowed onto the ‘inside’ of the medical profession to observe for 1 week. I wanted to see first- hand what on earth is going on. What I observed left me time and time again sick in my stomach. One such example I will never forget. A person came in from a failed suicide attempt. I requested to read the file notes and noticed that this person was trying to get off an SSRI whose doctor was clearly misinformed. I immediately and gently said to the person in charge who did not have prescribing privileges, “This person is not suicidal, it’s the drug!” I was then told very quietly, “Yes we know that but we are not allowed to say anything.” That person was sent home uninformed and heavily drugged.

 

It’s not just a case of one bad GP-apple in the apple barrel. The fact is the barrel in and of itself is totally rotten!

 

The world authority in this area Professor David Healy asserts that we are looking at a health care disaster that will dwarf thalidomide and recently declared: “I believe the SSRI era will soon stand as one of the most shameful in the history of medicine.”

 

 

Thank you for reading my letter.

 

Yours sincerely

nz11

 

“I could never understand why one of the nz boys was put on paroxetine…nz11 you deserve a medal for getting of that drug, we have many on our books who can’t get off paroxetine.” Recently retired Pharmacist. 2015

 

“Thank you for speaking up about this …we need more people like you.”

Whispered to me by the adjudicating lawyer as I left the ACC Review Hearing for Medical Misadventure Claim against ex-doctor. 2015

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cymbaltawithdrawal5600

Nz, I am jaw dropped speechless, that was the most cogent, tightly and well written letter I've ever seen. I could not have written it, I know I could not have.

 

How are they going to be able to ignore you? Yes, I know they are going to but this will leave a lasting impression on that MP and it will pinch at him everytime he hears of another pharmaceutical misadventure or death.

 

You actually went and observed somewhere and they told you what they did? I would have been screaming and ranting had I heard that.

 

I am really curious to know who you are IRL...... Well done, I only noticed 2 typos, :)

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cymbaltawithdrawal5600

Too late to edit and add to the above. I posted here because Nz11 invited me to read his letter, in case you were wondering why I am a fish out of the New Zealand waters..... it's a long swim from the Gulf.

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nz11

Thank you CW for your kind and more than generous comment.

 

nz11

Just a simple country boy from cow country down south and one  of the iatrogenically harmed.

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KarenB

You are very welcome here CW.  It's not surprising that people want to hang out with us Kiwis - it's the best thread around ;)

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cymbaltawithdrawal5600

Thanks for the welcome, KB! I'll try to stop in between my stints on youtube looking for more cat videos.....

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Alia02

New Zealand winters......arrrrghhhh! Grey fog down to the ground in Takaka. Fireplace gazing at present but hoping some of you fellow kiwis are getting some lovely sun. :ph34r:  :)

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KarenB

Apparently there might be sun in Raglan tomorrow - I'll be looking out for it. 

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Alia02

We have sun today and then another 10 days of rain forecast. Sun is good. :)

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Lillienz

Hiya pleased to see a NZ page. Am hoping to come off Paroxtine, but am really nervous about it.I work fulltime and cant afford to screw up and lose my job, nor do I want too .

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KarenB

Day by day is all you can do Lillie.  Nice to see you here :).

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nz11

Welcome Lillienz.

You have found a safe place.

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Lillienz

Thankyou for the welcome. But truely wish I didnt need to be here !

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Boomer

Hello - My name is Boomer.  I am supporting my husband who has crashed twice from tapering off prescribed drugs.  He is stable at present but we have been to hell and back!  Roll on summer!

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nz11

Boomer your husbands case is all too common and it is totally iatrogenic in nature. I am so glad to hear that he is now stable.

Please would you consider if you have not as yet done so, writing a complaint letter to the HDC, CARM and your local MP.

You can also change doctors and then take a ACC claim for medical misadventure against your ex doctor. I did that.

Thanks for posting in this thread.

 

nz11

Silence is not acceptance.

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Boomer

Boomer your husbands case is all too common and it is totally iatrogenic in nature. I am so glad to hear that he is now stable.

Please would you consider if you have not as yet done so, writing a complaint letter to the HDC, CARM and your local MP.

You can also change doctors and then take a ACC claim for medical misadventure against your ex doctor. I did that.

Thanks for posting in this thread.

 

nz11

Silence is not acceptance.

Hi Nz11 - Thanks for your reply.  I do not have the energy to follow through with a complaint or claim at present but maybe some time in the future. 

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nz11

I would like to draw kiwis attention to a campaign started 21 Sept. 2016 by CEP (the council for evidence based psychiatry) in England..  that asks people to write to their MPs requesting help for people dependent on prescription drugs.

 

They are "seeking to recruit more MPs to support its activities, and in particular its demand for a national helpline to support those affected by prescribed drug dependence."

 

Here is the link it is worth reading they have even provided a template for a letter to your MP.

http://cepuk.org/2016/09/21/support-campaign-recruit-mps-demand-national-helpline-prescribed-drug-dependence/#comment-20340

 

The situation in Britain is no different to what is occurring here in NZ.

 

I (again) invite/suggest/urge/ people to consider writing to their MP.

(Would the promise of a chocolate fish push you into action?)

But also consider writing to CARM, the HDC, your local health trust board and even the ACC. I can assure you that none of these people will tell you that you were the first to do so.

 

From CEP

  • Prescriptions of benzodiazepines, antidepressants and painkillers have risen dramatically over recent years
  • For example in the UK antidepressant prescription numbers have increased by 500% since 1992, with 11% of women and 6% of men taking the drug, while it is estimated that there are up to 1.9m long term users of benzodiazepines
  • Millions of people may be taking these drugs unnecessarily, and should come off with appropriate support
  • Side effects and withdrawal effects can be very severe and last for months and sometimes years, often leading to disability and sometimes suicide
  • There are currently hardly any NHS-funded services to help people withdraw from these or other psychotropic medications
  • The small number of existing charities who provide support can no longer cope with the rise in demand for their services
  • A national helpline and accompanying website would be an essential resource for patients, carers, families and doctors
  • It would be a low cost, yet effective national response to a recognised public health issue

nz11

A recent study in the Journal of Clinical Psychiatry 2015; 76 (1):40–44 Takayanagi et al, found that 69 % of people taking an antidepressant never met any criteria for depression.

[i have no doubt this is also the case here in NZ.]

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NZRecovery

Hey everyone,

Good to see a Kiwi forum, SSRI's have destroyed my life. 

 

Went to see a doctor when i was 17 surrounding anxiety related issues and Depersonalization/Derealization.

Prescribed Setraline without any knowledge of adverse reactions and never told that i should taper the medication once wanted to get off.

Started feeling really good around 2 months into the medication while going on and off it. 

Decided to quit cold turkey after around 5-6 months on and off usage, ended up relapsing into anxiety and now what i would class as depression/cognitive decline, started not being able to communicate and understand what anybody was saying, Could not pick up a book and find intrigue, could not continue at school where as academic performance the years before were good. And guess what they said to me "Your academic performance will increase and it should allow you to focus alot more" as my DR/DP was causing me to be dissociated but now realizing the implications and side effects/withdrawals from taking SSRI medication I would go back and just suffice to feeling dissiocated and ridden with anxiety. Those feelings were minor and insignificant in contrast to the hell in which im living now.

 

A point in which i have found from this nightmarish experience is that my depression was actually induced by SSRI medication and when I tried to stop and 

"thought i was feeling better" (like many other people who take AD medication) I feel head first into a pit of anhedonia, lost my previous self, and have PSSD and my social anxietys are magnified 1000x due to the fact that when I try to communicate i feel literally mentally retarded and dont understand anything the other party has to say. 

 

I feel like killing the phychiatrist whom prescribed me the horrid poison in which i so unnecessarily did not need. All of my family who drove me to take it regarded it the "best thing ever" and i continually tried to tell them that I was loosing myself and these unusual things were happining like feeling zombified, no ambitions, and decline in academia, yet nobody listened and look at the consequence. 

 

I just want to die in all honesty i have lost faith in our world and faith in coming out of this nightmare. 

And guess what? i can't work in simple jobs because my concentration and receptiveness is so bad, all of my bosses either have a go at me for not listening when i am trying to listen and am forgetting and severely lethargic to the point of just pure torture. Im 19 and i feel like i have the brain of a 80 year old with Alzheimer or something,  All i want to do is be successful and help people and not be a burden to my family as it is ruining my mum and my sisters life (whom im staying with for respite at the moment). I will literally try anything there is really nothing to lose at this point. Of course not SSRI/SSNI medications or ECT or anything to that demeanor. People dont realize how dangerous these medications and lines of "treatment" really are and all i can say is if i make it out of this i am going to educate and try and reform policy regarding the prescription of these medications as this is an absolute injustice and despicable reality.

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