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squirrel

Dizziness, vertigo, light-headedness etc & rocking/swaying/boat

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squirrel

Evidence suggests that selective serotonin-reuptake inhibitors may be more effective in treating labyrinthitis. They act by relieving anxiety symptoms and may stimulate new neural growth within the inner ear,[citation needed] allowing more rapid vestibular compensation to occur. Trials have shown that SSRIs do in fact affect the vestibular system in a direct manner and can decrease dizziness.

 

My point here is if they can decrease it when you take them it stands to reason it would increase it when you stop.

So why does the doc look at me as if I am an alien when I suggest this!!!!!!!!!!!!!

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Soso

You should find a good Chinese doctor

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ajay

...because you don't work for big pharma, so how could you know what's going on?

 

It really bugs me when doctor's won't listen. I thought this was more common in the US, where doctors are more demigods than those called to the healing profession. sigh.

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Nadia

Yeah, most of the time they just look at you like you're a hypochondriac. If I was a doctor I'd be asking all sorts of questions, taking notes, searching for clues.

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squirrel

I seem to be stuck in a rut of anxiety, dizziness and despair.I don't know how to help myself. I cannot go out alone because I feel so bad its hard enough to go out with someone with me,been out today to local shops felt dire.Was holding on to my mums arm had dp & dr was anxious and dizzy. I try so hard to tell myself its just symptoms but nothing changes.nothing is getting easier and my resolve is wearing so thin.

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Ucfgemini

I am in the same boat as you so its hard for me to give you advice. Every day is a new challenge... I talked to my therapist and my acupuncture therapist and both recommend MEDITATION!! I have been making a conscious effort to take several deep breaths from my stomach when I feel anxiety, depressing or obsessive thoughts coming on. So far so good. I know at times it can seem overwhelming and it is. I am only three weeks into withdrawal, but the first week was the worse as far as physical symptoms- the dizziness and feeling like I would pass out every time I turned my head. Antihistamines REALLY helped me. I only took one a day for a few days and then didn't need it anymore. Advil Allergy & Sinus worked great for me. They also make these wrist bands for motion sickness that my mom swears by. You can get them at the drug store by the motion sickness meds.

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squirrel

monday.............. I suffered half a day of intense inner restlessness and anxiety, hot & cold sweats and an extremely foggy head

 

Tuesday..............The same inner restlessness lasted all day and evening it felt like all the nerves on the inside were jangling out of control and I could not be still to read or watch tv

 

Wednesday.........The intense restlessness had gone only to be replaced by the most frightening balance problem. I felt as I stood still that the room was shaking from side to side and found it exremely difficult to walk around.

 

Thursday.............Again no restlessness or anxiety but my balance was worse than previous day not only was the room moving again but on standing it felt like the floor was undulating quite strongly under my feet again it was so very difficult to find my balance.

 

Friday ..................within a couple of hours of getting up this crushing fatigue came over me I was unable to do the simplest of tasks and just lay on my bed all day.Later in the evening the tiredness left me but my balance was off again like i was bouncing when I walked or when I sat down.

this is very frightening and I don't know what to do.

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angie007

Hi Ruth,

 

It sounds like you have had an awful week im so sorry, ive had the dizzyness, but this is something else,although i have heard others talk about undulating floor movements etc, sounds to me like its related though and likely to do with a vestibular problem from wd thats upset the balance mechanism in your body.

Hope it passes soon for you, sounds truly awful, hope others chime in to help you through hun.

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Nadia

I'm afraid I can't be of much help, other than to mention I have had dizziness of all sorts over the past few months. Lately I mostly don't feel dizzy, but when I do it is more drastic, making me lose my balance and fall or trip. I try not to think about it too much... perhaps it is just another expression of anxiety?

 

I sometimes think that when anxiety does not present itself openly it finds other routes... perhaps that is why your anxiety was replaced by dizziness. Or perhaps it is an after-effect, like the devastation a tornado leaves in its path.

 

Whatever it is that is happening to you, I hope it goes quickly!!!

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stan

hi,

 

in your case,

i would try to walk slowly half an hour outdoor with someone (or alone), and see if i have relief in the second half an hour walk

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poodlebell

Hi Squirell

 

You had a good night and had a drink and what is happening to you now is what happens to me. Not the drink, but if I do more, or eat different things then I have a bad time and it lasts for days, it does pass but hell while you are going through it.

 

Seems our bodies cant take us doing anything different.

 

poodlebell

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squirrel

I found this on a benzo forum and its exactly whats happening to me!

 

QUESTION............

 

What's bugging me now is a scary sort of dizziness. It isn't vertigo. Instead, I feel like I'm rocking on a boat constantly. Either that or it sometimes feels like the floor beneath me is moving. It's a constant and non-stop thing and it is unnerving to say the least.

 

ANSWER..........

The floor moving/boat sensation is called a perceptual disturbance and I can tell you 100% it is caused by the drugs. Many experience it in acute withdrawal and others have it last longer.

cant find any more info on perceptual disturbance though.

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angie007

Hi Ruth,

 

Glad you found this, it may help you to know that its normal in wd, it

is just as i told you perceptual disturbance.

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Nadia

I had this after going on a boat... it's what sparked it... it lasted months. Then it sort of started going away and then I got a different kind of dizziness. Now I randomly throughout the day get dizzy. The world seems to be moving in a fast sweeping sensation, almost always to the left. Sometimes I fall over because of it.

 

What's interesting to me is how varied my dizziness has been... it changes and mutates over time. I'm finally (or at least temporarily, I have to be careful about claiming success for anything or it comes back to bite me) at a point where it is not constant, at least! I even had a few days a couple of weeks ago where it was completely gone.

 

Of all my symptoms, I think this is the one I worry about least, because though it is annoying, at least it is not painfully hideous. I'm lucky it's not strong enough not to allow me to walk. I just can't drive most days...

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Baxter

I get a sense of the floor retreating, and I sway, feeling that I am falling. It comes and goes and seems most noticable when I am trying to go down stairs.

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wdtony

I also get this "unbalanced" feeling as if I am going to fall down and I sometimes do fall but not usually. It is not dizzyness or vertigo (I have both from time to time) but it is equally distressing to me. The intensity varies and sometimes I have trouble with spacial changes such as going outside, into a dark room, from sitting to standing or lying to positioning myself upright.

 

Mostly it feels like my brain cannot exactly grasp the surroundings and it seems to be attempting to adjust constantly. I also get a head pressure with this sometimes. This unbalanced sensation goes along with other perceptual problems which, in concert, make me feel as if I am not in reality. As of yet, I have always recovered from these bouts. But they always make return visits without warning and they have not improved (such as intensity lowering). I notice this sensation more when I am exhausted or lacking in sleep.

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angie007

So have been suffering with dizziness for some time now and after the last prescription for an antipsychotic which i have him back at an appointment i had today,

he checked me over and prescribed the antihistamine CINNARIZINE at 15mg tablets, he says the dizzyness will increase the anxiety too, which has been largely out of control today, im a little scared to take these to be honest remembering what DR Healy said about an antihistamine effectively putting us back on an ssri, so is there anyone here that can shed some light,

or maybe u have used this???? as my doctor is adamant i should use it and it will NOT ramp up any wd symptoms from paxil.

 

Who do i listen to, im so confused, he has diagnosed an inner ear imbalance, havent i heard that before somewhere from ex paxil users lol.

Needing advice please help.

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Punarbhava

So have been suffering with dizziness for some time now and after the last prescription for an antipsychotic which i have him back at an appointment i had today,

he checked me over and prescribed the antihistamine CINNARIZINE at 15mg tablets, he says the dizzyness will increase the anxiety too, which has been largely out of control today, im a little scared to take these to be honest remembering what DR Healy said about an antihistamine effectively putting us back on an ssri, so is there anyone here that can shed some light,

or maybe u have used this???? as my doctor is adamant i should use it and it will NOT ramp up any wd symptoms from paxil.

 

Who do i listen to, im so confused, he has diagnosed an inner ear imbalance, havent i heard that before somewhere from ex paxil users lol.

Needing advice please help.

 

Hi Angie.........

 

Yes, you likely do have an inner ear imbalance as many of us do during psyche drug WD.

 

Yes, dizziness will increase anxiety and anxiety will create dizziness however, what your doctor doesn't seem to understand is the following:

 

Psychotropic drugs, along with many other drugs, are known to cause ototoxicity and when this occurs vestibular problems, such as you are experiencing, can arise.

 

Psyche drug WD cause vestibular imbalances due to what is mentioned above. It takes time for the CNS and vestibular system to self-correct.

 

Any drug that works for vestibular problems will also have a negative rebound effect once you cease the drug. Yes, antihistamines work on the vestibular system however, you will likely pay a price once you stop the drug. Whatever you try to suppress now, with a drug, will rebound later.

 

So many people incur vestibular problems during psyche drug WD. I had so many symptoms on the list it wasn't even funny Angie however, over the course of time, as I recovered, all symptoms remitted.

 

Please believe Dr. Healey on this matter. He knows what he's talking about. Anthistamines do target psyche drug receptors. Antipsychotic meds are, in essence, very powerful antihistamines. In fact, anthistamines were among the first drugs used to treat depression, schizophrenia etc. I have a paper on that subject.

 

You mentioned the doctor prescribing an antipsychotic? Please don't even consider taking such, even for a short period of time.

 

I wish I could write more but I really need to get off-line but you are RIGHT to be concerned and good for you for questioning your doctor.

 

Just allow your CNS and vestibular system to naturally correct, on it's own, over the course of time. BTW you may not even be able to tolerate regular doses of antihistamines but may need to take a much smaller dose when in WD.

 

Some people get paraxodical reactions from a standard doses. Thus, instead of decreasing anxiety and dizziness etc. it can cause the opposite.

 

Geez......these doctors really make me incredibly angry. They continually destroy people's lives all the while claiming that they should be trusted. They know so little it's not even funny.

 

 

Please read the links I have provided below and BTW, your doctor should read these reports since, he/she needs to become more educated about the subject IMHO.

 

http://survivingantidepressants.org/index.php?/topic/277-drugs-that-damage-your-ears/

 

 

http://www.vestibula.../medication.php

 

The use of medication in treating vestibular disorders depends on whether the vestibular system dysfunction is in an initial or acute phase (lasting up to 5 days) or chronic phase (ongoing). During the acute phase, and when other illnesses have been ruled out, medications that may be prescribed include vestibular suppressants to reduce motion sickness or anti-emetics to reduce nausea.

 

Vestibular suppressants include three general drug classes: anticholinergics, antihistamines, and benzodiazepines. Examples of vestibular suppressants are meclizine and dimenhydinate (antihistamine-anticholinergics) and lorazepam and diazepam (benzodiazepines).

 

Other medications that may be prescribed are steroids (e.g., prednisone), antiviral drugs (e.g., acyclovir), or antibiotics (e.g., amoxicillin) if a middle ear infection is present. If nausea has been severe enough to cause excessive dehydration, intravenous fluids may be given.

 

Symptoms must be actively experienced without interference in order for the brain to adjust, a process called vestibular compensation. Any medication that makes the brain sleepy, including all vestibular suppressants, can slow down or stop the process of compensation. Therefore, they are often not appropriate for long-term use. Physicians generally find that most patients who fail to compensate are either strictly avoiding certain movements, using vestibular suppressants daily, or both.

 

VEDA medical advisor Timothy C. Hain, MD, has detailed information about the most commonly prescribed medications that can be a helpful starting point for talking to a physician about the available options.

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stan

for me,

 

someone who have never taken psymeds can have inner ear classic diseases which doctors cure sometime

but for us, it is a lack of receptors all over the body, chemical changes, any doctor can say what it is,it is a mix of dysregulations, we are disrupted, hormones are wrong, we are in chemical alteration; nothing to do with classic diseases

people who improved very much said there is only time , and we cannot speed healing

i suffer too from these, i am unable to really describe , it is ataxia and dizziness and light akathisia and terror and.. it is an abnormal symptoms from poison

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angie007

Thank you Pun, for your enlightening post as always, and i will be printing off those papers to give to my doctor,

who was adamant that my inner ear was in no way anything to do with paxil wd lol, how ignorent and ill informed.

I know what is causing this and hard as it is, i am not looking for a magic pill to fix it.

Yes he has prescribed, but that does not mean i have to be gullible enough to take it.

being naive and gullible is what got me into this mess in the first place.

 

Stan;- totally agree my friend, and im right there with you, ataxia, dizzyness, anxiety bordering on akathesia, TERROR AND FEAR,

i have come to know these horrendous symptoms so well unfortunately.

I am trying so hard to sit with these symptoms and just " let them be", trying not to fear that fear, this is a new routine for me

that i have tried to incorporate into my day, as my old " fear the fear" and panic just wasnt working and was spiralling out of

control.

The new method is HARD, but im trying to relax into it, as what i was doing didnt work, so now i am trying to change tack to see

if there can be improvements in how i feel, and praying very hard for us all, that eventually all of this will go away.

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angie007

Sorry Stan, typo, my post should read NO ataxia, but can associate with other symptoms you have.

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squirrel

A possible explanation for dizziness following SSRI discontinuation.

Smith PF, Darlington CL.

Source

 

Department of Pharmacology and Toxicology, School of Medical Sciences, University of Otago Medical School, Dunedin, New Zealand. paul.smith@stonebow.otago.ac.nz

Abstract

 

Dizziness is the most commonly reported symptom of abrupt discontinuation from the selective serotonin reuptake inhibitor (SSRI) category of antidepressants. The reported dizziness is exacerbated by even slight head movement, and therefore is likely to be vestibular in origin. The SSRIs most implicated are those with short half-lives and which are most selective for serotonin (as opposed to noradrenaline), e.g. paroxetine and sertraline. Since the vestibular nucleus complex (VNC) has an abundance of serotonin receptors, the abrupt withdrawal from an SSRI is likely to have a substantial impact on the electrophysiological activity of neurons within it. Here we suggest that the abrupt withdrawal from an SSRI is likely to cause a sudden decrease in serotonin in the VNC, which will disrupt the function of VNC neurons bilaterally, causing dizziness without vertigo.

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Pzen

Hi everybody, 

 

I´ve been getting these dizzy spells recently in my WD and my nerves seems to be in an uproar.

 

A couple of kind words and some tips would be much appreciated.

 

 

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Petunia

Hi Pzen,

I'm sorry to hear that your symptoms have become worse lately, I also get dizzy sometimes, but haven't found anything which helps it apart from waiting, it eventually passes.  If you would like to update your own introduction and update thread, and ask for support there, here is the link to it:

 

http://survivingantidepressants.org/index.php?/topic/6148-pzen-my-withdrawal-story-so-far/

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iquit

Hi All!

 

I am still trying to find my way around here, so I haven't posted much.  I think I have the search function and Google function figured out, but am shocked that there aren't more threads discussing the topics in my header!  It seemed on PP there were pages of threads discussing this!  I have found maybe 2-3 threads here.  I am starting to wonder if it's just me.

 

Dizziness, vertigo, and lightheadedness are by FAR my worst w/d symptom.  Honestly, it wasn't for that, I'd be pretty good to go other than the occasional anxiety attack.  I am eight months off Lexapro.  This has actually been an issue for me on and off since I got pregnant with my daughter, and was three months off basically a CT of Paxil.  I attributed it to the pregnancy.  Then, I had her, and my symptoms got WORSE!  They hung around until I started Lexapro.  While in the beginning months of Lexapro, I had my first ever experience with vertigo.  It has kind of been with me ever since on and off.  When I started weaning, it definitely picked up, and off the Lexapro, it hasn't been very fun.

 

My daughter is SEVEN, by the way.  That is a looooong time to be dealing with this.  And, I'd really like it to go away.  Like NOW.  RIGHT NOW.  I had a complete ENT workup after she was born, along with an MRI, and nothing was found.  I haven't really done any other testing since then, because I figure hey, it's been seven years.  If it was something serious, I probably wouldn't be typing this by now.  I have a 12 year history of SSRI use on and off... I am wondering if the long term use could have caused this as well.

 

Any other sufferers out there?  Why are your symptoms and experiences? 

 

Any out there who have had this issue, even for a long time, and have had it get better?

 

To all of you past PPers, feel free to skip or not reply!  I know you have all heard it before! ;)  Still just looking for some answers and relief...

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dalsaan

Hi iquit,

 

I know lots of people suffer this but it is probably more often talked about in their individual threads. If you use google to search Surviving Antidepressants and Vertigo you will pick them up.   I had this when I CT'd at one point but not while tapering so I'm not much use to you.

 

Dalsaan

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Daveguy2015

Hey iquit, Im in withdrawal from Lexapro 10mg (I basically went c/t because I listened to my doctor) and I have the same dizziness and vertigo feelings! Do you really notice this while driving? Are you having depersonalization also? Do you notice the waves, windows pattern?

 

I completely understand your plight and I dont know what to do about it either. Im really trying to be patience and wait for my brain to reset itself naturally. I don't know how long its going to take :unsure:

 

Dave

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iquit

Hi Dave! Yes, driving is uncomfortable to say the least. So is shopping... when I have to move my head from side to side and focus on a lot of different things, like while grocery shopping.

 

Waves and Windows... I really don't know. It is always with me. Sometimes worse than others though. So, waves, yes. Windows though, I'm waiting for those!

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DizzyGirl

I went to a dizziness specialist this year (very expensive visit ) And he did a full round of tests... I didnt show any nystagmus in any test.  It is not BPPV, no Menieres, not labyrinthis, no phobic vertigo and also not vestibular migraine.

 

I have been suffering for a long time like you. Lately I realize that it is somehow related to eating. I wouldnt even describe it as dizziness. it is more like a feeling of faintness and low blood sugar.

 

Very often it gets better when I drink coke.

 

So as I know right now that no vertigo doctor can help me, I have to change my diet.

This will be the last thing I will try.

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DizzyGirl

Hi Dave! Yes, driving is uncomfortable to say the least. So is shopping... when I have to move my head from side to side and focus on a lot of different things, like while grocery shopping.

 

Waves and Windows... I really don't know. It is always with me. Sometimes worse than others though. So, waves, yes. Windows though, I'm waiting for those!

Same with me.

 

This was one of the reasons I thought that it HAD to be BPPV but it wasnt. He did the Epley maneuver with me many times and it didnt help.

 

You could however try the Epley at home and look if it helps you

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imac

I went to a dizziness specialist this year (very expensive visit ) And he did a full round of tests... I didnt show any nystagmus in any test.  It is not BPPV, no Menieres, not labyrinthis, no phobic vertigo and also not vestibular migraine.

 

I have been suffering for a long time like you. Lately I realize that it is somehow related to eating. I wouldnt even describe it as dizziness. it is more like a feeling of faintness and low blood sugar.

 

Very often it gets better when I drink coke.

 

So as I know right now that no vertigo doctor can help me, I have to change my diet.

This will be the last thing I will try.

I've had this exact issue in WD. I'd go through waves ( sometimes would last months) where I FEEL like I have very low sugars and get shakey and dizzy and lightheaded and have to eat something sugary right away. And I've eaten a fairly good diet all through WD. Have had sugars tested a tonne of times and always fine. I found a tonne of people with this issue in WD, through my searches.

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iquit

imac, I am starting to feel that way too.  Like my blood sugars or blood pressure is low.  Nada.  It does make me feel better to know though that you don't always feel this way anymore.  I am DETERMINED to keep seeing the light at the end of the tunnel in this, even though some days that light feels just like a pin prick showing through.

 

I am going to try going gluten free for a few weeks and see if this helps at all.  I looked up symptoms of gluten intolerance and have almost every darned symptom.  The only one I didn't have was an autoimmune disorder.  Who knows though, maybe I have that too. :P  Out of ten symptoms, I had nine.  We will see.

 

DizzyGirl, have you tried diet changes at all?

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LostInTheWoods

I do agree with this, vertigo / dizziness is the worst WD symptom. While I don't stumble while walking or standing, it gives the feeling of being close to fall flat on the floor at any moment. It's distressing and sometimes the anxienty it brings starts to keep me from thinking straight or even cause me to stammer or miss some words when talking.

 

Is there an specific supplement for this? I hear magnesium helps the mood, but I'm looking for something to make me feel more "grounded".

 

The best I can tell you so far is that windows get broader but I don't know when waves fully end.

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Canadiangirl

I have felt like this fir about 7 yrs also. Things aren't really spinning it just my head gets very lightheaded, heavy and feels like I got off a spinning ride and the spinning gas stopped but ur head doesn't feel right. I feel like thus all day and it's so depressing. I don't know if it's because I had 2 strokes in my late 30s about 5 yrs ago and they happened in my cerebellum which is where ur balance mechanism I believe. It also really amps up my anxiety feeling like this. The thoughts constantly come to my brain of how am I going to do this all day feeling like this. So my days always start crappy because of these thoughts. Please help if anyone has found something that will help. I am just over 10 months off after a 10 month taper from lexapro 10 mgs.

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imac

Does anyone ever get a split second of dizziness even when just sitting down and doing nothing? I've had this episode a few times randomly over the past couple of years and now recently it's happened probably 5 times in the last couple of weeks. I'll just be sitting there and watching tv or on my laptop or phone and all of a sudden it's like I'm in a moving car for about 2-3 seconds and then it passes. But while it's happening, it's as if the room is quickly spinning and I almost feel like I'll fall over ( like a vertigo). It's quite scary when it happens because I've done nothing to provoke it and am not up and moving around. Has anyone ever felt this while sitting still???? Am not sure if I should be getting this checked out ( although it's happened a few times in the last couole of years while sitting infront of a computer at work and nothing came of it. anyone?

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