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Dizziness, vertigo, light-headedness etc & rocking/swaying/boat

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stan

when you are tapering psychotropics, at the end, the lack of the substance between nerves makes nerves inflamations, everywhere, brain, gut, legs, chest  etc in random, it is not only in one place, we feel fainting, or stroke, or adrenal , all this is complex, and if you wait, it goes away and unfortunately comes back, worse, different or milder...first years i called 3 times emergency, thinking dying and do not go, finally i was always alive, bad but alive, all this is classic disorder in nerves path, false amount hormones because the lexapro is no more here, it is classic chaos with strange symptomes with no logic, 

with time it will be better

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Happy2Heal

thank you Stan for your response. It just hit me like BAM and I was so scared, it felt so bad I thought I was having a stroke or maybe had a brain tumor.

 

I was afraid waiting it out might mean I'd "wake up dead" as they expression goes, but I'm glad I stayed home and eventually, about 3hrs later, things started to get better and I was able to sleep

 

wow, this stuff really sucks. but it's nice not to be alone with it anymore

thank you

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Meimeiquest

It's exactly how a hard bang of WD feels. Glad you're getting better!

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Happy2Heal

thanks

today has been stressful, very confused, memory even worse

i am just tking it easy and trying to take care of myself

 

went for  a little walk, it's unseasonably warm here

 

think i will have tea and a nap as i cna't seem to focus on anything at all

 

so glad i found this place and that i am not going crazy and (probably lol) not dying, but omg sometimes it feels like i must be

:/

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Mort81

I haven't talked about being dizzy all that much. Its been off and on for 16 months. Floaty boat is how I feel when it's strong. Its a clear signal to me that my body is still in WD.

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Toulouse

Dizziness / Light headedness is my latest WD symptom, just starting at 7 months out.  It might have to do with the increased anxiety I'm feeling suddenly too, so it's very possible the dizzy feeling and the anxiety are connected.  I haven't had a flat-out panic / anxiety attack, with the classic symptoms (heart pounding, shallow breathing) but the light headed /dizziness that comes out of nowhere, then I start feeling a bit panicky, because I think I'm going to fall or pass out.  I think I'm in a wave right now and hope it goes away soon as I find this symptom the most debilitating of any of my others.

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Mort81

Hey Toulouse. It will weaken and comes and go. Mine has done this. But mine is definitely not from anxiety. Sometimes Ill get anxiety from the dizzy feeling but not the other way around.

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Toulouse

Sorry if there's another topic, but I couldn't find anything in the archives.   I've been suffering through dizzy spells (along with panic and anxiety).  I have read that antihistamines and dramamine can help with the dizzy symptoms.  Has this worked for anyone?  I tried omega 3 and was not sure if it made it worse actually. 

 

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Itzakadoozee

I've had the sudden dizzy/lightheaded feelings at times, when sitting down and standing/walking, usually lasting a few seconds. I've also had days where I've felt dizzy and light headed for hours, usually corresponding with an increase in other symptoms.

 

When I used to travel and would get jetlag, one of my symptoms used to be a sensation that the ground was moving under my feet, like being on a boat. I've seen the term 'boaty' on a benzo board and was thinking this might be what this sensation is called.

 

I haven't had this boaty kind of dizziness in withdrawal, but I wonder if anyone else here would describe their sensations like being on a moving boat.

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Itzakadoozee

How is everyone? How still dizzy? I just want a timeframe of how long mine might last?

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AliG

Itzakadoozee.  I'm not sure if anyone can give you a time frame as it is so individual in that respect , however I can say from my own experience that my dizziness lasted approximately 12 - 18 months. Now, totally gone.  

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ChessieCat

I've recently experienced dizziness.  The first time was just after boarding a train.  The second time (4 days later) lasted for the afternoon and at one stage I was walking across the lounge room and must have looked like I was drunk.  I wear multi-focal spectacles (have done for about 7 years now) and in my case it seems to be related to my brain not being able to process the transmitted signal from my eyes as quickly.  I did check my BP and it was okay.

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Itzakadoozee

Thanks! I appreciate the response.

Itzakadoozee. I'm not sure if anyone can give you a time frame as it is so individual in that respect , however I can say from my own experience that my dizziness lasted approximately 12 - 18 months. Now, totally gone.

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Ndanges

My dizziness is not related to equilibrium or movement.. It is like I feel the sensation of a strong dizziness surounding my head. This symotom I always had. Before the drugs..during the drugs and after I am off..It is a kind of nerve pain I think..I think is related to muscles tention inflamating the nerves..someone here experience this kind of dizziness too?

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Junglechicken

I also experienced this for the first time after having had the flu vaccination on 14th Nov 2016.  It came and went the whole of last week and was very unnerving.

 

It can only be described as feeling as though I was about to pass out, but never actually do pass out.  Sometimes, it would feel as though my head was swaying very slightly.  Extremely odd sensation.  I think I can relate to the "boaty" feeling too.

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IrishMonkey92

I have the rocking/swaying/internal pendulum sensation in time with my heart beat. I've had it now 1.5 years after stopping Citalopram cold turkey, and 1 year to the day that the symptom started after a panic attack.

 

How is squirrel now after all these years?

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Flowers

I am in a wave and suffering from a seasick feeling and loss of balance when I am moving about. It goes if I am sitting or lying down. I had this 2 years ago when first in WD and as I stabilised it disappeared. Now it is back with a vengeance but I am hoping that it will go as I feel better.

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LostInTheWoods

For a time it was one of the symptoms that bothered me the most to "will I ever be normal" levels. It has been only on the return of a recent wave that I remembered what it is to be SSRI dizzy but the rememberance means I had already forgot what it felt like.

 

I can vouch that the dizziness does go away on a sufficiently large time lapse (think of trimesters).

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IrishMonkey92

Does ANYBODY know what happened to Squirrel? 

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IrishMonkey92

I have to ask, and it scares me, the fact I can't find many topics on these symptoms of this forum. 

I see plenty of Benzo withdrawal people with these symptoms. However I know only of one thread started by Squirrel, which has just died in terms of activity. Squirrel has vanished also - does anyone know what happened to them? 

I'm looking reassurance that people with anti-depressant withdrawal (protracted) do experience this symptom of mine that I've had going on 13 months now. 

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ProzacWasCreatedBySatan1

I experienced this for a couple months, like I drank a fifth of whiskey. It seemed to stop randomly, I forget how long ago though.

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LexAnger

Hi irishmonkey,

What symptoms are you referring to?

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Altostrata

According to the scientific literature, dizziness and vertigo are the most common withdrawal symptoms.

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LilyBlueRose

I'd like to know if others are experiencing this as well. I'm going on a year of dizziness and now 5 months of rocking /swaying /boat feeling

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Aelius

I've had these symptoms for 8 months so far.

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LilyBlueRose

I'm so sorry to hear this. I have an appointment with a vestibular specialist next week, but I am thinking about cancelling. I think its going to be pointless, and the bill is going to cost me at the very least 1k with my insurance :( Im so sick of this crap, but I also truly believe this isn't going to be forever. 

 

Sometimes I just get so scared, like I think what if it gets worse, what if this never ends? But then I realize that there is a chance of it going away forever, and getting a little better each day. 

 

I often wonder if this is even withdrawal, but this came on 2-3 weeks after quitting celexa, and I did not have these issues before it. I suffered bppv while pregnant, and right before the dizziness came on, but I know what that feels like, and it goes away after 2 weeks with epley. This is different. I feel the pressure and congestion in my ears, and like Im on a boat. 

 

Are your ears congested at all Aelius? 

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Aelius

I'm so sorry to hear this. I have an appointment with a vestibular specialist next week, but I am thinking about cancelling. I think its going to be pointless, and the bill is going to cost me at the very least 1k with my insurance :( Im so sick of this crap, but I also truly believe this isn't going to be forever. 

 

Sometimes I just get so scared, like I think what if it gets worse, what if this never ends? But then I realize that there is a chance of it going away forever, and getting a little better each day. 

 

I often wonder if this is even withdrawl, but this came on 2-3 weeks after quitting celexa, and I did not have these issues before it. I suffered bppv while pregnant, and right before the dizziness came on, but I know what that feels like, and it goes away after 2 weeks with epley. This is different. I feel the pressure and congestion in my ears, and like Im on a boat. 

 

Are your ears congested at all Aelius? 

 

Hi Kalinia,

 

I described my dizziness symptoms and how it started in IrishMonkey`s introduction. I`d like to add that worsening of the symptoms began after abrupt withdrawal of Venlafaxine. I also never had this issue before pills. In the past I had BPPV twice. That was something completely different. It happened in the bed and took a while. It went away in a few days after I did epley manuevers.

I don`t feel any pressure in my ears and my hearing is good. Only after taking Mirtazapine I hear a weird noise in my ears. I`m considering a visit at ear specialist`s, though.

I`m also wondering if this is a withdrawal symptom or it`s a psychogenic dizziness. As my psychotherapist says, I can`t do anything about it in boths cases. There is no special cure for it. Only time will show. In the meantime we must not focus our attention on it and feed our fears. It`s easier said than done especially when it`s been taking so long and it`s life ruining but it`s a simple truth.

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LilyBlueRose

Thank you for writing that. It truly makes sense, and is a wonderful way to think. I often imagine, if I didnt have the anxiety, would this still rule me as it does? Anxiety makes things a million times worse! I wish you nothing but a lifetime of healing , happiness and getting better and better each day! All the best! :) 

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Aelius

Thanks for your wishes, Kalinia. I'm not good at coping with this kind of dizziness. Actually I think about it most of the time. I had it regardless of anxiety. Now I'm in a withdrawal and my anxiety is still strong.

How long have you had this dizziness? Sad thing is nobody knows when and if it disappears. I still have fear it will be forever.

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LilyBlueRose

I know, it is really hard to deal with :( I find that if I shake my foot or leg while sitting still, it helps me not notice it as much, since my body is in motion as well as my mind. I have had it for a year now. It started as general dizziness and ear pressure after a bppv attack  in February of last year. This was also 2 weeks after quitting celexa.  In october I had a severe moment of anxiety, and on came the in motion, on a boat, swaying in a pool on a raft feeling. 

 

I feel that since we did not have this before the medication, that we just have to heal. Its not going to be forever. We will get through this. Have you though about trying vestibular rehab? I hear that can help with dizziness. I am considering trying that. Its just hard to believe this cant be withdrawl related since I have never had ear pressure or dizziness until a few weeks after stopping celexa. 

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IrishMonkey92

I'd like to know if others are experiencing this as well. I'm going on a year of dizziness and now 5 months of rocking /swaying /boat feeling

How soon after you stopped Citalopram/Celexa did this symptom start - did it happen sudden;y out of the blue, or did you take a panic attack which brought it on, like me? Are you any better? Has the sensation changed at all?

 

Does anything make you better, or do certain situations or times make you feel worse? I do feel better in the morning, then it starts getting bad around 12pm. 

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LilyBlueRose

It happened about 3 weeks after stopping celexa. I had a Bppv attack and then general dizziness and progression of ears becoming super congested.

 

I honestly am not sure if I'm any better or if I've just become a little more used to it. I hate the new rocking boat sensation though. That has only been since October after several days of a ton of stress.

 

Mine is consistent. I notice it when I'm still. I don't notice it much when I'm in motion. Some periods of time definitely worse than others.. And then some days where it's way more manageable

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Aelius

I think that vestibular rehabilitation is worth trying. My cousin who`s been on ADs for 17 years has mild balance issues from time to time. She do excercise to intentionally improve her balance.

Kalinia, have you seen any doctor due to your balance issues? Your problems sound like a true vertigo.

BPPV and panic attack can trigger psychogenic dizziness. I was originaly positive for vestibular test.

When I think things can`t be any worse, I developed tinnitus in my left ear. Really amazing!

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Farout

I had this pretty badly and didn't go to the doctor because I put it down to withdrawal. Turns out that I had an ear infection in one ear and a bunch of hardened wax in the other. I had antibiotics & my ears syringed and it sorted the dizziness.

 

I still get that dull, plugged ear sensation from time to time.

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LilyBlueRose

Well I just went to a vestibular specialist yesterday. What a waste of $1200. Several hours of tests that sucked! Induced dizziness. Saw the Dr for about 6 minutes after. All tests can back normal ( I still have to get an mri but Dr says pretty much guarantee it will be normal.)

 

So in that time period this specialist who is supposed to be THE dizzy Dr to see, told me that he has no idea what is wrong with me. Said he sees patients all the time who are like me but has no idea what's causing it. He told me to take. Klonopin twice a day! He said don't read about klonopin online to just take it! And take more if I need it. That I won't get addicted and will be totally fine on that small of a dose. Oh and I have options! If that isnt adequate I get to try zoloft and then if that isn't adequate I get to try celexa again! ( because my body may simply need it)

 

Ugh.

 

As soon as he offered klonopin I was done listening. My husband was there too. He Is also suffering terribly since quitting celexa a year ago. We both just looked at each other defeated.

 

I asked him if he thinks this could. Be Withdrawl. He said good question but he's never seen WD last this long.

 

Overall I'm glad I don't have any of the big Issues those tests can find, but I'm also very upset I paid so much to simply be offered drugs.

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Aelius

Wow, $1200 flushed down to the toilet! It took several hours? What tests did they do? I spent around 30 minutes at specialist neurologist`s. Luckily in our country it`s covered by health insurance.

OMG, I`m not suprised he suggested Klonopin! It`s a vestibular supressant and strong anxiliotic. It`s simply nonsence you won`t get addicted. My psychiatrist told me I couldn`t be addicted to 0.5mg and it wasn`t true. Did the doctor tell you what to do when Klonopin stops working (when you hit the tolerance)? I bet he didn`t. I`m pretty sure if I hadn`t taken Clonazepam, I wouldn`t have balance issues today. I`ll never take it again, I don`t want to risk memory impairment and dementia when I`m old.

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