Doctorsrcrap: can't cry and frustrated

[Happy2Heal]

On 6/3/2024 at 12:38 PM, Doctorsrcrap said:

And obviously some pain meds which did not work. 

just curious which pain meds did you try?  I ask because some times pain meds can have a paradoxical effect, causing pain instead of relieving it.

 

esp in someone sensitized to meds.

 

regarding CBD oil, there's a topic about it here: it's unfortunately quite long and starts off talking about interactions with meds, so I don't know if there's an answer to your question in there or not

https://www.survivingantidepressants.org/forums/topic/18698-cannabis-marijuana-hashish-thc-cbd-cannabidiol-or-hemp-oil/#comment-85476

 

 

anecdotally, some members have tried it and felt it helped with WD symptoms, others did not have a good reaction or felt it made things worse

 

I don't know if this forum has any official stance on the safety of CBD oil

 

I looked into research on using it for pain, and did not find anything convincing.

There weren't many good studies, the randomized controlled trials (RCTs)

There don't seem to be very many good studies on the drug your dr recommends, either, I  found one trial that shows that it's mildly effective, but only  for a short period of time. The pain returned.

 

IF you are determined to want to ingest something to try to deal with this pain, I'm going to step away from this thread, as I worry about the outcome and care about you, and don't want to see you end up being worse off.

 

I'd really love to hear that you've honestly tried non drug methods, yes they require effort on your part, but they do indeed work and more importantly, they're safe. Or at least safer (I have reservations about chiropractic care myself but that's just me)

 

The choice is always yours.

It sucks to be in this position. It really does.

 

it sucks that the medical systems in your country and in mine are so ineffective {and in the US, so profit driven that real effective care is not the top priority any more.}

 

It's a royal pain in the a$$ that as patients, we have to do so much on our own to figure out what will help us,

but on the other hand- there is some freedom in this

 

we have the freedom away from the drs biases, to see what TRULY helps us and to adjust what we do to what works best.

 

 

 

Edited June 7 by Happy2Heal

[LotusRising]

3 hours ago, Doctorsrcrap said:

Is CBD oil a big no no?

It seems to work for some and not for others, like everything, unfortunately. I considered it when I had really severe nerve pain, but was ultimately too afraid to try it. I believe it can take some trial and error in terms of finding the right strain. If you were to try, as always, start low and go slow. Personally, I think it's a safer option than pharmaceuticals, but that's just me. You could try topical first? Less systemic absorption that way.

 

If you decide to try it, let us know. I'd be interested to know if it works. 

[Tom2020]

7 hours ago, Doctorsrcrap said:

Is CBD oil a big no no?  

The naturopath at my chronic fatigue clinic recommended the Greenleaf Medical Clinic. It's in Canada so unfortunately they're won't treat you but I mention it because it was news to me that such a place exists. It's not one-size-fits-all. You need the right combination of ingredients for your system. They have a large range of products and they choose one for you based on a long intake interview. Maybe there's a similar place that treats people in the UK. They also have information for patients and professionals online including this on chronic pain https://greenleafmc.ca/our-learning-centre/chronic-pain

 

 

[Doctorsrcrap]

Is magnesium glycinate good for burning pain? 

I would do epsom salt baths but I cant tolerate them. Ever since being in withdrawal I can not have baths and I'm finding all the different types of magnesium confusing 

[Tom2020]

On 6/8/2024 at 7:50 AM, Doctorsrcrap said:

Is magnesium glycinate good for burning pain? 

I would do epsom salt baths but I cant tolerate them. Ever since being in withdrawal I can not have baths and I'm finding all the different types of magnesium confusing 

Yes, it is confusing. I read glycinate is good for pain and causes less diarrhea than some forms. Usually people take it orally but there are brands you spray on your skin. I don't know how effective they are but I imagine they're even less likely to give you diarrhea than oral magnesium.

[Tom2020]

Is your burning pain in your skin or deeper inside? Inside your muscles?

[Doctorsrcrap]

Inside like muscle and nerve pain 

[manymoretodays]

On 6/8/2024 at 8:50 AM, Doctorsrcrap said:

Is magnesium glycinate good for burning pain? 

I would do epsom salt baths but I cant tolerate them. Ever since being in withdrawal I can not have baths and I'm finding all the different types of magnesium confusing 

 

You might try making a cream or lotion or trying a spray on.

More about those in the main topic:  Magnesium: nature's calcium channel blocker

Unfortunately the links in the first post there aren't connected anymore to the posts in that topic, but I found a few on the first page that pertain.  And it may be worth it to you, to go through the rest of the topic to see if there is a situation of pain/burning similar to yours that someone got relief from

And then there is more in the following posts, pertaining to using some magnesium topically.  I've seen lotions and sprays sold in the more natural type shops too.  Always cheaper to make your own.   Seems that magnesium citrate is mentioned, as well as Epsom salts to make a lotion, cream, or spray.

 

Glycinate orally, might help you relax enough to sleep better, and have an overall calming effect whole body.  Thus, calming the affected area.  Worth a try.  

 

Read the first post in the topic as well.  And don't overdo, with too many different types of magnesium at once, that could create more problems.

 

Do report back if you try magnesium, and how it went.  If it helped, even a wee bit would be sooooo nice I'm sure.

 

L, P, H, and G,

mmt

 

 

 

[Doctorsrcrap]

@Happy2Heal

I've tried

Physio

Chiropractor 

Oesteo

Accuouncture

Ordinary pain killers

Magnesium

Cold water exposure

Hypnosis 

Cut out gluten 

 

Nothing has worked. I don't understand it. It freaks me out because I can't find anyone eith the same problem. That freaks me out even more 

[Happy2Heal]

7 hours ago, Doctorsrcrap said:

@Happy2Heal

I've tried

Physio

Chiropractor 

Oesteo

Accuouncture

Ordinary pain killers

Magnesium

Cold water exposure

Hypnosis 

Cut out gluten 

 

Nothing has worked. I don't understand it. It freaks me out because I can't find anyone eith the same problem. That freaks me out even more 

 

There are many other non drug methods that you don't mention at all. There are other options if you're willing to give them a try

 

I assure you there are others with the same problem, but it would likely take you hours of reading to find them

and many have commented on your thread about their issues with long term pain and what they did for it.

 

I know it can be hard to think of other things when you are in pain but chronic pain is sadly quite common for people in general and as hard as it is, it doesn't do you any good to focus so much on it.

 

What is going on in your day to day life? what sorts of things do you enjoy doing?

 

as incredible as it may seem it is possible to live a good life in spite of the pain.  People do it all the time

The choice is yours. 

 

Find things that you enjoy and immerse yourself in those things. Play music, dance if you feel up to (an excellent suggestion I'm stealing from someone else, hahaha) 

Go for a walk in nature

Play with your sweet rats! oh I wish I had some rats to cuddle!

hang out with friends

watch a funny movie

go out to a sporting event if  you like that sort of thing

take up a hobby

 

have you tried yoga?

It can be very helpful for all sorts of WD symptoms

 

soon this symptom will pass and maybe there will be a new one in it's place but nothing lasts forever

 

see if you can try to focus on what you can do, and try to put the pain in the background

 

I had searing burning pain in my feet when I went off a high dose of Depakote, so I know that what I am asking of you is not easy

believe me, I know!! 

 

but since nothing else that you've done so far has helped, you just keep going til you find something that does

 

and sometimes that means trying hard not to think about those things you are not currently able to change

 

I had tinnitus for many many months, and it drove me mad! I hated it so much!

but the more I hated it and was angry about it, the worse it got

When I finally accepted that and tried to make friends with it, the happier I was 

until one day I realized that the ringing was gone!

it had slipped away when I wasn't paying attention

 

I am praying that something similar happens for you

 

Tell me what the last thing was that you did for fun, please.

 

 

[Doctorsrcrap]

The problem is I can not sit because the pain is excruciating. 

I have never heard of anyone else with this problem. I have scoured this site and I can't find anyone. 

I was doing well coping with withdrawal until the pain started. I was doing the pub quiz once a week (not drinking) going to some family events and working. I was distracting from my other problems. I can not dostract from this. 

I don't understand what happened. Where this has come from and why. 

[Doctorsrcrap]

I've tried to do other things.

I was drawing to distract

Watching funny TV with my husband 

I walk on a daily basis 

I do stretching 

I've tried a tens machine 

 

I don't know what more I can do. I've never known a pain like it 

 

The last thing I did for fun was attend a wedding two weeks ago. It was unbearable. 

 

[Happy2Heal]

so very sorry DRC

I'm at a total loss for what to do.

 

[Doctorsrcrap]

[Happy2Heal]

19 minutes ago, Doctorsrcrap said:

The problem is I can not sit because the pain is excruciating.

is it only when you are sitting?

 

please don't take offense at this question, I am sleep deprived today and some things just pop into my brain when I'm really tired

 

but looking at the title of your thread, I was wondering-

are you able to cry now?

 

because I am crying for you.

 

I don't know, sometimes crying flushes things out of your system (or so I've heard not sure that's 100% true, shrug) but I know sometimes I'll have a big pity party for myself and I do feel a bit better later

 

but even if you can't cry, I am crying on your behalf for you and your difficult journey

I sure hope and pray things ease up for you soon!!!!!!!!

 

❤️❤️❤️ 
 

[Doctorsrcrap]

Thank you. I have back pain when standing and it hurts to walk and I get some pain in my buttocks on standing however the second I sit or lay it is scorching and just unbearable. 

 

I can now cry yes, it still doesn't feel quite right but yes I can. A lot of the problems I did have at the beginning are resolving. If this pain hadn't started I would be functioning relatively well. I was excited at the end of last year, things weren't good but I was doing better. I don't understand what happened to me 

[Happy2Heal]

5 minutes ago, Doctorsrcrap said:

I have back pain when standing and it hurts to walk and I get some pain in my buttocks on standing however the second I sit or lay it is scorching and just unbearable. 

what does the dr say is causing it? 

 

[Happy2Heal]

also have you tried NOT walking and not spending much time on your feet (if possible) ? in other words, have you tried resting it?

 

it sounds a lot like either sciatica or piriformis syndrome (not really related to WD at all) 

 

do you ride a bike?

 

there are so many different things that can cause those symptoms - surely the dr must have had some idea what the likely cause was?

 

removing the cause would be the first thing I'd want to do, assuming that was possible.

 

 

[Doctorsrcrap]

Dr had kind of just washed his hands of it because I went private for the scans and just says take amitriptyline which I'm inching towards doing. I've been fighting it off for so long. 

The specialist hadn't seen me yet with any answers but I've seen the MRI reports and nothing really stands out as causing it. 

Do you not think it's withdrawal? 

[Happy2Heal]

1 minute ago, Doctorsrcrap said:

Dr had kind of just washed his hands of it because I went private for the scans and just says take amitriptyline which I'm inching towards doing. I've been fighting it off for so long. 

The specialist hadn't seen me yet with any answers but I've seen the MRI reports and nothing really stands out as causing it. 

Do you not think it's withdrawal? 

to answer your last question first- these kinds of pains have so very many causes!!! 

I'm not a Dr so I can't really say but I would want all of the more common causes totally ruled out first

that's just me

 

 

 

I think you need to wait til you hear back from the specialist and see what they have to say, don't you?

 

Just reading the MRI report is not the same as talking to a dr

Your dr isn't just going to read the report, he will look at the full scan himself and make his own judgement about what it means.

 

when do you see the dr?

 

 

 

[Barry2954]

Has your doctor tested you for diabetes? Insulin resistance and diabetes can be induced by antipsychotics and seem to have similar symptoms to those which you describe. https://diabetesjournals.org/diabetes/article/62/9/3232/33935/Antipsychotic-Induced-Insulin-Resistance-and If so then your condition might not be withdrawal but still be due to the medications as you contend. https://www.healthdirect.gov.au/diabetic-neuropathy Excessive sweating is normal in diabetes.

[Happy2Heal]

2 hours ago, Doctorsrcrap said:

I have never heard of anyone else with this problem. I have scoured this site and I can't find anyone.

https://www.survivingantidepressants.org/forums/topic/26883-burning-sensations-from-withdrawal-skin-mouth-head-elsewhere/

 

 

https://www.survivingantidepressants.org/forums/topic/24635-body-pain/

 

https://www.survivingantidepressants.org/forums/topic/22141-insistpersistresist-muscle-pain-and-burning/

 

https://www.survivingantidepressants.org/forums/topic/24140-lovingly-bad-side-effect-withdrawal-after-stopped-mirtazapine/

 

https://www.survivingantidepressants.org/forums/topic/24574-normalhuman-complicated-prozac-withdrawal-symptoms/

 

 

burning pain and nerve pain are also mentioned in this thread and in many many other

https://www.survivingantidepressants.org/forums/topic/6504-neuromuscular-symptoms-muscle-tics-twitches-fasciculations-spasms-cramps-restless-legs/page/4/

 

Your symptoms are also very common in people who are NOT going thru WD and there is a long long list of causes and potential treatments

 

 

if it's WD related you can rejoice, IT WILL SURELY END eventually!!

if it's something medical, eventually you will find some one who can help and/or the pain will go away on its own

 

don't give up hope, the answer is out there

 

 

~~~~~~~~~~~

you never did say, did you do anything fun TODAY? 

 

I don't know if you realize this but I am desperately trying to get you to take the focus off your pain and think of something else, anything else!

 

It should be clear that we are not doctors, we can't see you in real life, only a dr or other medical professional can do that, they will have your history and know about your lifestyle and other things that may contribute to the issue you're having.

 

we can offer you ways to deal with this by using the power of your mind and your mindset and your beliefs, 

we can offer our sympathy and support

but we can't take your pain away nor give you any thing even close to a diagnosis, of course

 

we share your frustration

it's a long hard journey

 

 

[Doctorsrcrap]

No I don't have diabetes. Apparently I don't have anemia either all though I think some of my blood results are questionable. Bur finding a knowledgeable doctor is well...... impossible. 

I'm seeing the rheumotologist tomorrow for my results. The last MRI I had was with contrast. I thought that was safe. I'm now thinking wad that a mistake?? 

At this point it just feels like there is danger everywhere. 

[Barry2954]

1 hour ago, Doctorsrcrap said:

No I don't have diabetes. Apparently I don't have anemia either all though I think some of my blood results are questionable. Bur finding a knowledgeable doctor is well...... impossible. 

I'm seeing the rheumotologist tomorrow for my results. The last MRI I had was with contrast. I thought that was safe. I'm now thinking wad that a mistake?? 

At this point it just feels like there is danger everywhere. 

Good luck with the rheumatologist. The sweating seems to be a simple thing to solve as it's listed as a side effect of certain psychiatric medications, specifically beta blockers and antidepressants, on the Mayo clinic page on excessive sweating. https://www.mayoclinic.org/symptoms/excessive-sweating/basics/causes/sym-20050780 When I was taking a look at whether beta blockers, including propanolol, could cause conditions like the sciatica and neuropathic pain which you have described I found that it is possible due to their influence on blood vessels. I found two websites explaining that expanded blood vessels can cause compression of the sciatic nerve (unfortunately on commercial sites so I can't provide you with links here). Poor blood supply to peripheral extremities can cause similar pain to that in peripheral neuropathy. This could be why investigations have failed to prove anything yet.

[Doctorsrcrap]

I am not longer on the propranalol though. 

I don't really get much of the sweating either 

[Barry2954]

I wonder whether the hypoglycemia which propanolol can induce could persist long after treatment. Hypoglycemia is capable of inducing the symptoms which you describe and, through affecting blood vessels, could possibly induce sciatica.

[Doctorsrcrap]

But I don't have diabetes 

[Barry2954]

33 minutes ago, Doctorsrcrap said:

But I don't have diabetes 

You don't have to have diabetes to have hypoglycemia. https://www.mayoclinic.org/diseases-conditions/hypoglycemia/symptoms-causes/syc-20373685

[Doctorsrcrap]

I don't know what to think anymore. 

[Barry2954]

1 minute ago, Doctorsrcrap said:

I don't know what to think anymore. 

I know what you mean. It took me over ten years of searching through medical research and pushing doctors for testing to work out what psychiatrists had done to me with their drugs and very few doctors were willing to help me to find out.

[Doctorsrcrap]

If you are saying propranlol could cause it does that mean it's not reversible????? 

[Barry2954]

While I have heard doctors and read researchers contending that diseases are irreversible I defer more to the idea that every condition is reversible if the way can be found to do it. I read a while ago that the benzodiazepine induced neurological dysfunction, which I have been symptomatic of, can potentially be irreversible. Since that means that the experts currently don't know how to even try I have been focusing on improving my microbiome, since such damage often derives from damage to microbial balances in our bodies. What I have little trust in is medication to treat everything that goes wrong with us. Before you ask, I wouldn't rush out to buy cannabinoids as there are lots of dietary interventions to try which work as pain relief.

[Doctorsrcrap]

I'm sick of this. I've had my gut checked it's near enough perfect. I don't understand. I can't carry on in this amount of pain its just not doable. 

[Doctorsrcrap]

@Happy2Heal

All my MRIs came back fine and so did all my blood tests. 

 

[Happy2Heal]

1 hour ago, Doctorsrcrap said:

@Happy2Heal

All my MRIs came back fine and so did all my blood tests. 

 

 

 

well, we are just volunteers here, doing our best to support people thru withdrawal

 

we certainly don't have all the answers and we can only do so much

 

when you are faced with a situation that you can't change at the moment, your only options are to accept it and work hard to find ways to cope,

or to fight it and waste a lot of time and energy and resources to NO benefit for yourself, in fact, it's more likely to work against your recovery to stay angry and frustrated at things you can't change

 

it's ultimately your choice

 

please do not tag me, I'm on break.

I will pop in from time to time, when I am able to.

 

 

 

 

 

Edited June 15 by Happy2Heal

[Barry2954]

2 hours ago, Doctorsrcrap said:

I'm sick of this. I've had my gut checked it's near enough perfect. I don't understand. I can't carry on in this amount of pain its just not doable. 

You would be surprised about how little the experts know about the microbiome. I have been reading articles about specific sub-strains of pathogenic bacteria which are actually healthy and specific substrains of healthy bacteria which actually have negative health consequences. Yet none of this has been officially acknowledged and medical professionals are unlikely to comment on it. This article details how the microbiome regulates neuropathic pain. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7433133/