Doctorsrcrap: can't cry and frustrated

[Erimus]

19 hours ago, Doctorsrcrap said:

Been told have b12, iron and D deficiency

That will certainly be contributing to your problems. A few non-medication things you can incorporate to aid this:

 

• Spend time in the sun over summer.
• Eat oily fish 5+ times a week. Sardines, mackerel, salmon, kippers (herring), trout.
• Eat organ meats, such as liver.
• Drink a solution of apple cider vinegar in water 1-2 times per day. It may be that long term antidepressant use has impacted your stomach acid levels, it's common. This can lead to poor absorption. The apple cider vinegar solution helps promote stomach acid production and hence increased absorption. You can buy apple cider vinegar from independent health food shops, as well as chains like Holland & Barrett. Just make sure you dilute it in plenty of water.

Edited July 22 by Erimus

[Doctorsrcrap]

Thank you. I already eat lots of leafy greens. Organ meat and fish. My body just won't absorb it. 

And I walk a lot but I live in England and we ain't even having a summer this year apparently 

[Erimus]

1 hour ago, Doctorsrcrap said:

Thank you. I already eat lots of leafy greens. Organ meat and fish. My body just won't absorb it.

Try the apple cider vinegar solution 20-30 minutes before your meals, it should aid absorption. Anything is worth a try.

 

  

1 hour ago, Doctorsrcrap said:

And I walk a lot but I live in England and we ain't even having a summer this year apparently

So do I, and even we have had some sun in the North of England this year.

Edited July 22 by Erimus

[Doctorsrcrap]

Thank you. 

Keeps bloody raining. Need a proper summer 

[Tom2020]

On 7/21/2024 at 8:36 AM, Doctorsrcrap said:

. Think I have an absorbtion problem. Don't know why. Waiting to be referred to gastro. 

. A stool test showed low pancreatic enzymes 

Low enzymes could account for the B12, iron and vitamin D deficiencies and abdominal pain. There are enzyme supplements, which are probably prescription only in the UK, but as you have the test results it should not be an issue to get them and perhaps you don't need to wait to see a gastroenterologist.

 

There are many possible causes and it would be helpful to follow up on what it might be as that might point to the way to more treatment. https://en.wikipedia.org/wiki/Exocrine_pancreatic_insufficiency

[Tom2020]

@Doctorsrcrap have you taken B12 supplements recently? Did you react to them?

[Doctorsrcrap]

I took sublingual. No reaction. Probably because not absorbing it 

[Tom2020]

Could you give yourself a microdose of the B12 injection to see if you react before taking the full dose?

[Doctorsrcrap]

No not really. 

Everyone else I have spoken to who suffers with b12 deficiency says rhey have never heard of someone having burning in the buttocks. This annoys me. So probably another waste of time. 

I canr carry on like this. Something needs to change or I'm done 

[Tom2020]

It seems you'll absorb some from a big enough oral dose even with a malabsorption issue. Could you try that to see if you react before you try injecting a massive dose?

 

Quote

Injection of hydroxycobalamin is often used if digestive absorption is impaired,[2] but this course of action may not be necessary with high-dose oral supplements (such as 0.5–1.0 mg or more),[90][91] because with large quantities of the vitamin taken orally, even the 1% to 5% of free crystalline B12 that is absorbed along the entire intestine by passive diffusion may be sufficient to provide a necessary amount.[92] https://en.wikipedia.org/wiki/Vitamin_B12#Intramuscular_or_intravenous_injection

 

[Doctorsrcrap]

I was taking big doses of sublingual. Unless you know of bigger doses?

[Tom2020]

How much B12 were you taking and for how long?

[Doctorsrcrap]

Erm.... 1000 for 3 months I believe 

[Tom2020]

25 minutes ago, Doctorsrcrap said:

Erm.... 1000 for 3 months I believe 

That's a fair bit, although I have seen 10,000mcg pills. Was that recently? If so, and you didn't react badly, that's reassuring.

[Doctorsrcrap]

So I've just been told I need to have an endoscopy, colonoscopy and a CT scan. Seeing as I have a few deficiencys. 

I'm scared 

[Kostas]

Hi ,

What all these invasive tests suppose to show...?

 

Who suggested them?

 

Please be careful from whom you are getting medical advice for your situation...!

 

 

 

 

 

 

 

 

[Tom2020]

23 minutes ago, Doctorsrcrap said:

So I've just been told I need to have an endoscopy, colonoscopy and a CT scan. Seeing as I have a few deficiencys

This is progress. Hopefully it will help get to the root of things and lead to better health.

[Doctorsrcrap]

@Kostas

This is the advice of a gastroenterologist.

Because I have several deficiencies.

Substantial weight lose.

Unexplainable pain.

Low pancreatic enzymes etc

 

I have no windows. If I had waves and windows I wouldn't be doing this. Bur with no windows and constant pain I think it's best to check out everything.

After all not everything is withdrawal. 

[Kostas]

Good morning ,

Ok understand !

hope that everything goes alright ☺️

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

[Doctorsrcrap]

Just did my first b12 injection. 

Pray for me 

[Tom2020]

How are you feeling? There are sometimes side effects for people who have not gone through withdrawal, so if you feel anything it may be nothing to do with withdrawal.

[Doctorsrcrap]

OK thank you. I'm dreading new problems kicking off

[Tom2020]

That's great! That's a very good sign.

[savinggrace]

On 7/24/2024 at 4:53 PM, Doctorsrcrap said:

Erm.... 1000 for 3 months I believe 

Is that mg. or mcg.?  1000 mcg. is usually a standard dose for an injection.  I self-inject 500 mcg. every 1-2 weeks and the markers for deficiency (methylmalonic acid and homocysteine) back to normal range within just a few injections.  The standard protocol for most people is 500 mcg. but I have a lot of trouble sleeping if I inject a whole mg. (1000 mcg.) so I stick to 500.  One should be supplementing folate and B6 as they are co-factors with B12.

[Doctorsrcrap]

1500pg is the dose. Need to do that 2 times a week for 3 months he said. Then will review from there. 

I cant remember what you said the reason fir your deficiency was?

[Catina7]

15 hours ago, Doctorsrcrap said:

Just did my first b12 injection. 

Pray for me 

 

I hope it goes well!  🙏💜

[Jaffa]

🙏🏻🙏🏻🙏🏻🙏🏻🩷

[Catina7]

Hey @Doctorsrcrap, how are you doing?  I hope you didn't get any bad reaction to your shot.

 

Also, I was sharing info about Bile Salts with another member and was wondering if you've ever looked into taking it to help with your nutrient absorption issue.

 

https://www.drberg.com/blog/the-9-benefits-of-bile-salts

[ShantyO7]

On 7/9/2024 at 3:58 AM, Doctorsrcrap said:

If this pain went away I think I could cope quite well with what remains but the pain had literally ruined my life and its not a sustainable way to live not being able to sit or lay down. It's exhausting.

 

Can you please elaborate on not being able to sit down or lay down. I haven't been able to either and would like to know what is going on with you? Sorry if I missed it but where/what is the pain you are referring to?

[Barry2954]

You could try something called palmitoylethanolamide. Normally our bodies produce it from things like eggs, peanut oil, and soy lecithin, but it's also possible to buy it in supplements. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10053226/    I suspect that psychiatric medications may be able to somehow reduce our bodies production of it.

[Doctorsrcrap]

To help with what? You will have to forgive me I'm very ill and can not read articles at this time

[Barry2954]

Its anti-inflammatory properties help to reduce neuropathic pain and normalise body function. It has been proposed as an alternative to cannabinoids in reducing pain. It even reduces levels of microbiome bacteria which are associated with disease and increases levels of healthy bacteria.

[Doctorsrcrap]

Thank you. 

At the moment waiting for CT scan, endoscopy and colonscopy. 

I have officially hit rock bottom. 

I'm not sure I will make it back from this. 

I'm hoping one of these tests will explain why I am so sick. But I doubt it 

[Barry2954]

A lot of us have been where you are now and have eventually experienced some recovery with the right treatments. I needed a couple of months of antibiotics, removal of my gall bladder, and five years for my body to get over the worst of it.

[Doctorsrcrap]

I don't understand how I can be worse now than I was at the beginning of this. 

All I know is I don't have much more in me to give.

Thanks for reaching out 

[Barry2954]

I didn't understand that either at the time. The dysfunctions caused by the drug withdrawal just seemed to keep getting worse for me over the first couple of years. Hopefully people here can provide you with some answers which will help to prevent you from having to go through too much more.