Xcaretuk Posted Sunday at 06:38 AM Share Posted Sunday at 06:38 AM I thought this maybe of interest: obviously her symptoms have been extremely severe however the message applies to all caregivers whatever the degree of our suffering. 😘 1998(approx.) 20mg Paroxetine, 1998 -2015 various unsuccessful tapers, 2015 app 6 month taper to 0, 2015 approx 6 months later reinstated original brand after debilitating neurological delayed WD symptoms. Made worse after surgery.2023 Famotidine, Cetirizine, New Generic, muscle relaxer. March/April19th June, 2023 - 23rd July, 2023: Paroxetine Dosage reduced from 20mg to 15mg (on 15mg for 35 days), no significant symptoms. 24th July, 2023 - 26th July, 2023: Paroxetine Dosage reduced from 15mg to 12.5mg (on 12.5mg for 3 days), no significant symptoms. 27th July, 2023 - 3rd September, 2023: Paroxetine Dosage reduced from 12.5mg to 10mg (on 10mg for 39 days), no significant symptoms. 4th September, 2023 - 15th September, 2023: Paroxetine Dosage reduced from 10mg to 5mg i.e. 10mg every other day (on 5mg for 12 days), although not noted, must have experienced some symptoms, as I decided to return to previous 10mg dosage on the 16th September. 16th September, 2023 - 25th November, 2023: Dosage increased from 5mg to 10mg i.e. 10mg every day (on 10mg for 71 days), symptoms start dates: Late September sweating, shaking and right side upper back pain., 5th October 23: Upper back pain worsening,21st Oct 23: Night time symptoms: insomnia, nausea, sweats, headaches, some anxiety (predominantly in the mornings)27th Oct 23 admitted to hospital with 1st hypertensive crisis with severe frontal headache (now suspected of withdrawal ) BP 225/115. Admitted twice more with high BP . Doctors at a loss for cause. Given anti nausea, anti anxiety and sleeping tabs in hospital. . 1st Nov 23: , heart palpitations, some anxiety.. 7th Nov 23: Anxiety was now becoming more frequent (not severe). 26th November, 2023 Dosage increased from 10mg to 20mg possibly first time taking 20 mg of Extine, new manufacturer. Approx around this time came of antihistamines . 3rd Dec 23 - 18th Dec, 23: Started taking 7.5mg - 15mg of Oxazepam when anxiety became unbearable only took 8 in total now stopped. Symptoms now more severe have head pain rather than headache. .Electrical shocks through body overnight accompanied by head pain. Sheer terror,. Sore eyes. 23rd Dec 23: All symptoms remain the same i.e. severe except for the last 2 days where my anxiety levels have not been as severe/ extreme and somewhat manageable (later in the day).22 Jan 24 Have some windows now but still suffering from all day head pain, upper back pain, waking up inner restlessness and terror , nausea, intermittent feelings of fear and wake up 12.30 am every morning and sometimes up to 3 times a night with weird tingling down arms and back, pounding heart head pain and nausea. 2nd March 24, head pain/eye pain everyday and all day and & night wake ups.. Mild Akathisia early morning,, upper back pain, sweats. Anxiety much better. 21st April 24, drop 2.25% drop to 19.5 mg to test help with head /eye nerve pain and new symptom tinnitus. 12/5/24 19mg still eye/head/ back pain. Mild AKA AM. 2/6/24 18.93mg 9/8/24 18.04mg, 16/8/24 18mg, 19/9/24 17.6mg Link to comment
Schmeg82 Posted Sunday at 03:31 PM Author Share Posted Sunday at 03:31 PM Racing again today, and tremoring internally so bad. Even my stomach, arms, neck, head, and this racing anxiety with it. I can’t handle this. Thankfully it comes and goes but it’s the most uncomfortable feeling and I’m getting it so much more often now, I dont know why. Started tapering Paxil 20mg July/August 2023. Got to 5mg January 2024 and started to have vision issues from Withdrawal. February 2024 severe withdrawal issues started, reinstating to 10mg Tuesday March 5th 2024. Plan on trying to stabilize at 10mg. 8/19/24 2% decrease 9.8mg Link to comment
LostInCanada Posted Sunday at 03:43 PM Share Posted Sunday at 03:43 PM @Schmeg82 please look over this link https://pubmed.ncbi.nlm.nih.gov/19962288/ Because we are in withdrawal taking 1-2 drops of lavender oil in hot water has helped some on here. I have found a chamomile lavender tea that is very calming as well. As long as you do not have ragweed allergies, chamomile is very helpful. Are you taking magnesium bisglycinate? It takes about 6 weeks but is also helpful for anxiety. Vitamin C also helps regulate adrenaline rushes. Try one at a time to insure no reaction. Is your B12 low too? Maybe trying a very small dose to start. It is necessary for nerve healing. I am not a medical professional. My comments are based on my personal experience and information on this site. 2016-twice weekly for a couple months-oxazepam 10 mg sleep/ 2020-22-once a week 3.75-7.5 mg for sleep/20 yr+ Paroxetine/ Dec2018-May 2022 20 mg/ May 2022 30mg/2022.07.28-2022.08.24 30mg to 0mg/ August 24-29 2022 10mg Prozac/2022.11.28-2022.12.04- 5mg Paroxetine/Dec 5&6/22 10mg Paroxetine/ Dec 8&9/22 10mg Prozac/ 2022.12.07 to 2023.07.01 5mg Paroxetine TAPER 23.07.02-58mgpw/4.9mgai/ 23.07.21-4.8mg/23.07.28-4.73mg/23.08.04-4.65mg /21.09.23-4.58 mg/27.10.23-4.56 mg/5.12.23-4.54 mg/2.1.24-4.52 mg/9.1.24-4.51 mg/17.1.24-4.49 mg/26.1.24-4.47mg/6.2.24-4.46mg/ 19.2.24-4.44mg /4.4.24-4.43mg/28.4.24-4.4 mg/5.5.24-4.39 mg/19.5.24-4.36 mg/2.7.24-4.34 mg/9.7.24-4.32mg/31.7.24-4.3 mg/ 1.10.24 -4.29mg/ 8am-probiotics/9am-paroxetine, 200mg mag bisglycinate/ 1000mg Vitamin D/5pm-75 mg DGL/200mg calcium citrate/0.25 mcg melatonin nightly "... your strength will be in keeping calm..."-Isaiah 30:15 Link to comment
Moderator Catwoman73 Posted Sunday at 05:50 PM Moderator Share Posted Sunday at 05:50 PM I think stress probably has a lot to do with the uptick in your symptoms @Schmeg82. I'm so sorry, and wish I could do more. LostInCanada has made some good recommendations for things you could try. Sending lots of love... 1995- 2007- On and off multiple antidepressants (Prozac, Paxil, Effexor, Wellbutrin, escitalopram). Memory poor- can’t remember dates. Always tapered fast or CT. 2007- tapered Wellbutrin, zopiclone and escitalopram over one month to get pregnant. Withdrawal hell for many years. 2009- Daughter born 🥰 Post partum depression/psychosis- no meds taken. 2016- Back on escitalopram due to job change/anxiety 2022- Severe covid infection- Diagnosed with long covid 08/22. 2023- 01/23- Long term disability approved for long covid. Started taper under MD advice from 20mg: 11/23- 15mg. 2024- March-10mg. Started low dose naltrexone for long covid-5mg- terrible reaction, reduced to 0.5mg. April- 10mg escitalopram, 1.0mg LDN. May 1- 9.0mg escitalopram, 1.0mg LDN. May 15- 9.0mg escitalopram, 1.5mg LDN. June 12- 8.5mg escitalopram, 1.5mg LDN. July 8- Brassmonkey micro taper started. 8.4mg escitalopram, 1.5mg LDN. July 15- 8.3mg esc, 1.5mg LDN. July 18 8.3mg esc, 2.0mg LDN, July 22 8.2mg esc. 2.0mg LDN. July 29 8.1mg esc. 2.0mg LDN. Aug. 24- 8.0mg Esc. 2.0mg LDN. Aug. 30 7.9mg esc. Sept. 6 7.8mg esc. Sept. 13 7.7mg esc. Sept 21 2.5mg LDN Supplements/other meds: Vitamin D, B12, Claritin, HRT PLEASE DO NOT PM ME! PLEASE ONLY TAG ME FOR URGENT QUESTIONS! Thank you! I am not a doctor. I don't even play one on TV. This is not medical advice, but based on personal experience. Please consult a medical professional. Link to comment
Schmeg82 Posted Monday at 10:22 PM Author Share Posted Monday at 10:22 PM On 10/13/2024 at 11:43 AM, LostInCanada said: @Schmeg82 please look over this link https://pubmed.ncbi.nlm.nih.gov/19962288/ Because we are in withdrawal taking 1-2 drops of lavender oil in hot water has helped some on here. I have found a chamomile lavender tea that is very calming as well. As long as you do not have ragweed allergies, chamomile is very helpful. Are you taking magnesium bisglycinate? It takes about 6 weeks but is also helpful for anxiety. Vitamin C also helps regulate adrenaline rushes. Try one at a time to insure no reaction. Is your B12 low too? Maybe trying a very small dose to start. It is necessary for nerve healing. My b12 is low but I’ve raised it recently, I take a multivitamin with b12 in it and vitamin C, I’ve been taking extra vitamin C when I was feeling unwell also. I take 100mg of regular magnesium sometimes also. I’ve been very very tremory lately, my insides have been shaking and vibrating so bad Started tapering Paxil 20mg July/August 2023. Got to 5mg January 2024 and started to have vision issues from Withdrawal. February 2024 severe withdrawal issues started, reinstating to 10mg Tuesday March 5th 2024. Plan on trying to stabilize at 10mg. 8/19/24 2% decrease 9.8mg Link to comment
Schmeg82 Posted Monday at 10:23 PM Author Share Posted Monday at 10:23 PM On 10/13/2024 at 1:50 PM, Catwoman73 said: I think stress probably has a lot to do with the uptick in your symptoms @Schmeg82. I'm so sorry, and wish I could do more. LostInCanada has made some good recommendations for things you could try. Sending lots of love... I’m sure the stress didn’t help, I’m definitely in another really bad wave, my symptoms were terrible again today, internal tremors/vibrations really bad, lethargy, motion sickness feeling, dizzy. Started tapering Paxil 20mg July/August 2023. Got to 5mg January 2024 and started to have vision issues from Withdrawal. February 2024 severe withdrawal issues started, reinstating to 10mg Tuesday March 5th 2024. Plan on trying to stabilize at 10mg. 8/19/24 2% decrease 9.8mg Link to comment
LostInCanada Posted Monday at 10:44 PM Share Posted Monday at 10:44 PM 18 minutes ago, Schmeg82 said: shaking and vibrating When I am like this it is usually excess adrenaline. Often walking leisurely on the treadmill helps me, a warm bath, my weighted blanket, deep breathing, cold water on my feet and hands. Sometimes I just have to let it happen and wait it out. I agree that the added stress has just put your body in overdrive...how could it not. ❤️🙏 I am not a medical professional. My comments are based on my personal experience and information on this site. 2016-twice weekly for a couple months-oxazepam 10 mg sleep/ 2020-22-once a week 3.75-7.5 mg for sleep/20 yr+ Paroxetine/ Dec2018-May 2022 20 mg/ May 2022 30mg/2022.07.28-2022.08.24 30mg to 0mg/ August 24-29 2022 10mg Prozac/2022.11.28-2022.12.04- 5mg Paroxetine/Dec 5&6/22 10mg Paroxetine/ Dec 8&9/22 10mg Prozac/ 2022.12.07 to 2023.07.01 5mg Paroxetine TAPER 23.07.02-58mgpw/4.9mgai/ 23.07.21-4.8mg/23.07.28-4.73mg/23.08.04-4.65mg /21.09.23-4.58 mg/27.10.23-4.56 mg/5.12.23-4.54 mg/2.1.24-4.52 mg/9.1.24-4.51 mg/17.1.24-4.49 mg/26.1.24-4.47mg/6.2.24-4.46mg/ 19.2.24-4.44mg /4.4.24-4.43mg/28.4.24-4.4 mg/5.5.24-4.39 mg/19.5.24-4.36 mg/2.7.24-4.34 mg/9.7.24-4.32mg/31.7.24-4.3 mg/ 1.10.24 -4.29mg/ 8am-probiotics/9am-paroxetine, 200mg mag bisglycinate/ 1000mg Vitamin D/5pm-75 mg DGL/200mg calcium citrate/0.25 mcg melatonin nightly "... your strength will be in keeping calm..."-Isaiah 30:15 Link to comment
AAOffZ Posted Tuesday at 02:30 AM Share Posted Tuesday at 02:30 AM 4 hours ago, Schmeg82 said: internal tremors/vibrations really bad, I second what @LostInCanada said. This usually passes once the anxiety passes but it lasts a few days for me after something stressful or just a bad wave. Weighted blanket, I listen to Tyler boss read psalms on YouTube (his voice is SO soothing), vagus nerve massage (google this) and box breathing. Ice cold shower whenever the anxiety is unbearable. These have been my best coping mechanisms so far. Hugs, Meg. You’ve had a lot happen, your nervous system will come back to baseline. Sertraline 25 mg (Jan 2016) 50 mg (Feb 2016) Down to 25 mg for second pregnancy (2019) 75 mg due to PPA (Sept 2019) Down to 25 mg for third pregnancy (2020) 50-> 75 mg ->100 mg (Jan 2023) Felt good for long while so reduced to 75 (Nov 2023). Back up to 100 after some symptoms of anxiety (Dec 2023) 125 (Dec 2023) didn’t help so->150 mg (Feb 2024) Horrible adverse reaction to 150/kindled Doc suggested lowering Sert and add Buspar. Started 2.5 mg 3x per day same day at going down to 100 mg Sert. March- CT’d buspar and dropped down to 87 mg Sert. Intermittent .25 or .50 Xanax use. Like once a week. Haven’t taken it since April 2024. Found SA, stopped the madness. (April 2024) hold at 87 mg -micro tapered a few mg over 1-2 months but should’ve held longer after stabilizing at 87 (8.31.24) 84.6 mg • (9.22.24) 83.9 mg accidental small drop due to scale malfunction; plan to hold here for at least a month. (Current: Natural Calm: 50-100 mg per day in water, 0.5 mg melatonin nightly) Link to comment
Schmeg82 Posted 19 hours ago Author Share Posted 19 hours ago I am reallllllllly struggling. My symptoms are SO bad. Worst I’ve had yet. My mouth, teeth, jaw and tongue hurt so bad in and off all throughout the day. I have chest/throat tightness again. My akaithsia is the worst it’s ever been for days now. I don’t know if I can go on like this! I’m at a loss. I’ve cried allllll morning, I’m so tired. Started tapering Paxil 20mg July/August 2023. Got to 5mg January 2024 and started to have vision issues from Withdrawal. February 2024 severe withdrawal issues started, reinstating to 10mg Tuesday March 5th 2024. Plan on trying to stabilize at 10mg. 8/19/24 2% decrease 9.8mg Link to comment
Xcaretuk Posted 11 hours ago Share Posted 11 hours ago Oh Schmeg, I am so sorry. It feels relentless doesn’t it? But you started to feel a bit better before and you will again. Paxil is such a hard drug to deal with I know. We are all here for you xxxxx 1998(approx.) 20mg Paroxetine, 1998 -2015 various unsuccessful tapers, 2015 app 6 month taper to 0, 2015 approx 6 months later reinstated original brand after debilitating neurological delayed WD symptoms. Made worse after surgery.2023 Famotidine, Cetirizine, New Generic, muscle relaxer. March/April19th June, 2023 - 23rd July, 2023: Paroxetine Dosage reduced from 20mg to 15mg (on 15mg for 35 days), no significant symptoms. 24th July, 2023 - 26th July, 2023: Paroxetine Dosage reduced from 15mg to 12.5mg (on 12.5mg for 3 days), no significant symptoms. 27th July, 2023 - 3rd September, 2023: Paroxetine Dosage reduced from 12.5mg to 10mg (on 10mg for 39 days), no significant symptoms. 4th September, 2023 - 15th September, 2023: Paroxetine Dosage reduced from 10mg to 5mg i.e. 10mg every other day (on 5mg for 12 days), although not noted, must have experienced some symptoms, as I decided to return to previous 10mg dosage on the 16th September. 16th September, 2023 - 25th November, 2023: Dosage increased from 5mg to 10mg i.e. 10mg every day (on 10mg for 71 days), symptoms start dates: Late September sweating, shaking and right side upper back pain., 5th October 23: Upper back pain worsening,21st Oct 23: Night time symptoms: insomnia, nausea, sweats, headaches, some anxiety (predominantly in the mornings)27th Oct 23 admitted to hospital with 1st hypertensive crisis with severe frontal headache (now suspected of withdrawal ) BP 225/115. Admitted twice more with high BP . Doctors at a loss for cause. Given anti nausea, anti anxiety and sleeping tabs in hospital. . 1st Nov 23: , heart palpitations, some anxiety.. 7th Nov 23: Anxiety was now becoming more frequent (not severe). 26th November, 2023 Dosage increased from 10mg to 20mg possibly first time taking 20 mg of Extine, new manufacturer. Approx around this time came of antihistamines . 3rd Dec 23 - 18th Dec, 23: Started taking 7.5mg - 15mg of Oxazepam when anxiety became unbearable only took 8 in total now stopped. Symptoms now more severe have head pain rather than headache. .Electrical shocks through body overnight accompanied by head pain. Sheer terror,. Sore eyes. 23rd Dec 23: All symptoms remain the same i.e. severe except for the last 2 days where my anxiety levels have not been as severe/ extreme and somewhat manageable (later in the day).22 Jan 24 Have some windows now but still suffering from all day head pain, upper back pain, waking up inner restlessness and terror , nausea, intermittent feelings of fear and wake up 12.30 am every morning and sometimes up to 3 times a night with weird tingling down arms and back, pounding heart head pain and nausea. 2nd March 24, head pain/eye pain everyday and all day and & night wake ups.. Mild Akathisia early morning,, upper back pain, sweats. Anxiety much better. 21st April 24, drop 2.25% drop to 19.5 mg to test help with head /eye nerve pain and new symptom tinnitus. 12/5/24 19mg still eye/head/ back pain. Mild AKA AM. 2/6/24 18.93mg 9/8/24 18.04mg, 16/8/24 18mg, 19/9/24 17.6mg Link to comment
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