Schmeg82 Paxil withdrawal and taper after 21 years

[Schmeg82]

4 hours ago, Sebas said:

Ginger like garlic, fenugreek, celery, turmeric and others is a very powerful herb with strong medicinal effect such as blood clotting, anti inflammatory, antibacterial etc. It is not recommended with paxil and may contain alcohol from the fermentation process.

Good to know thank you 

[Schmeg82]

Is it typical to feel worse again months later? I’m in the end of month 6 since withdrawals started and I’m feeling even worse then I was last month, or over all.   My symptoms are back with a vengeance and I feel awful.  I feel like there’s no light at the end of the tunnel.  Is this just a bad wave? I reinstated 4 months ago almost and I’m just getting worse 😞

[LostInCanada]

2 hours ago, Schmeg82 said:

My symptoms are back with a vengeance and I feel awful.  

Could it be a wave? Do you feel a small reduction might help? How long were you at 5 mg before you went up to 10 mg? Once you start tapering, how were you planning to reduce? Manufactured liquid, homemade liquid or dry cuts? 

 

[LostInCanada]

9 hours ago, Sebas said:

may contain alcohol from the fermentation process.

Definitely never use a tincture with alcohol. 👍

[Schmeg82]

2 hours ago, LostInCanada said:

Could it be a wave? Do you feel a small reduction might help? How long were you at 5 mg before you went up to 10 mg? Once you start tapering, how were you planning to reduce? Manufactured liquid, homemade liquid or dry cuts? 

 

I’m not sure I want to do any kind of changes right now, I’m so afraid a reduction at this point could make me even worse.  

[LostInCanada]

4 minutes ago, Schmeg82 said:

not sure I want to do any kind of changes right now

❤️

[Schmeg82]

4 minutes ago, LostInCanada said:

❤️

I am so so lethargic today, I went to work for a few hours and I felt SO weak, I had trouble even climbing back up into my truck trying to leave work.  My eyes were so “off” nothing looked like it was lining up properly and when I’m stopped everything’s shaking more which makes me dizzy.  I just feel so incredibly weak I hate this.  I laid in bed and fell asleep for a short time and don’t feel any better.  I went out to a restaurant last night with family for my husbands 50th birthday and it was very overwhelming not sure if that’s what triggered this or what. 

[LostInCanada]

15 minutes ago, Schmeg82 said:

it was very overwhelming

I find any stress very detrimental to me. I think WD is all my body can handle and anything more tips me over the edge so easily. Be kind to yourself. Lower expectations. Nothing wrong with that. ♥️

[Schmeg82]

2 hours ago, LostInCanada said:

I find any stress very detrimental to me. I think WD is all my body can handle and anything more tips me over the edge so easily. Be kind to yourself. Lower expectations. Nothing wrong with that. ♥️

My family expects me to get out and do things they don’t understand how difficult this is for me right now unfortunately so I push myself 

[ShantyO7]

6 hours ago, Schmeg82 said:

I went out to a restaurant last night with family for my husbands 50th birthday and it was very overwhelming not sure if that’s what triggered this or what. 

I remember you talking about being nervous about this... I'm so sorry!

[ShantyO7]

3 hours ago, Schmeg82 said:

My family expects me to get out and do things they don’t understand how difficult this is for me right now unfortunately so I push myself 

I'm sorry! That must be really hard! Can they not see that you feel worse after?

[Schmeg82]

Just now, ShantyO7 said:

I remember you talking about being nervous about this... I'm so sorry!

I had about an hour of feeling okay then things got bad, I just got very overwhelmed, started feeling sick, just wanted to rush to the truck and go home but had to power through it so I didn’t act rude.  It was awful. I used to love going to eat and socializing 

[Schmeg82]

1 minute ago, ShantyO7 said:

I'm sorry! That must be really hard! Can they not see that you feel worse after?

They do but they don’t believe it’s all withdrawal 

[ShantyO7]

3 minutes ago, Schmeg82 said:

It was awful. I used to love going to eat and socializing 

I so sorry! I really miss going out to eat, too 😭

[ShantyO7]

3 minutes ago, Schmeg82 said:

They do but they don’t believe it’s all withdrawal 

What do they think it is? (if you don't mind my asking)

[Schmeg82]

2 minutes ago, ShantyO7 said:

What do they think it is? (if you don't mind my asking)

They just can’t believe coming off a pill would do this to me for this long now 

[LostInCanada]

8 minutes ago, Schmeg82 said:

They just can’t believe coming off a pill

This is an iatrogenic illness. The fact this word even exists shows how common it is.

Maybe they need to watch this BBC program:

https://rumble.com/v2wlt7g-the-antidepressant-story-bbc-panorama-documentary.html

 

[ShantyO7]

11 minutes ago, Schmeg82 said:

They just can’t believe coming off a pill would do this to me for this long now 

😔

[Schmeg82]

16 minutes ago, LostInCanada said:

This is an iatrogenic illness. The fact this word even exists shows how common it is.

Maybe they need to watch this BBC program:

https://rumble.com/v2wlt7g-the-antidepressant-story-bbc-panorama-documentary.html

 

Exactly!

[Schmeg82]

Today I felt the worst I’ve felt since WD started.  My vision has been awful all day, it has made me sick to even try and watch tv, I’m very weak and shaky, I was excited that my husband cooked an amazing dinner, I even sat at the table and ate with the family but immediately after I ate I felt so ill.  I was very dizzy and nauseous, weird pressure in my ears and head as well and my right eye felt like it wasn’t working as well as the other eye, this happens sometimes but worse this evening.  I jumped in the shower and in bed as fast as I could after dinner, I’ve been spending so much time in bed lately it’s so disheartening.  I’m at my wits end with these symptoms as they keep getting worse.  

[Sebas]

On 6/21/2024 at 8:09 PM, Schmeg82 said:

I went out to a restaurant last night with family for my husbands 50th birthday and it was very overwhelming not sure if that’s what triggered this or what. 

 

10 hours ago, Schmeg82 said:

I was excited that my husband cooked an amazing dinner, I even sat at the table and ate with the family but immediately after I ate I felt so ill.

 

During withdrawal our CNS will respond to certain food ingredients as you have personally experienced twice lately. Lot of people on this website have been obliged to make quite drastic changes to their diet and elmininated several ingredients, things they ate or drank before, even things they put on their skin or use in the car or household. Here's a short list of things to avoid at dinner: caffein, theine, chocolate, medicinal herbs like garlic, curcumine, celery, strong peppers and others, amino acids and certain anti inflammatory; from one person to another and from one phase to another the elimination list during withdrawal may be small upto very long. We learn, evaluate, adjust and move on.

[Schmeg82]

1 hour ago, Sebas said:

 

 

During withdrawal our CNS will respond to certain food ingredients as you have personally experienced twice lately. Lot of people on this website have been obliged to make quite drastic changes to their diet and elmininated several ingredients, things they ate or drank before, even things they put on their skin or use in the car or household. Here's a short list of things to avoid at dinner: caffein, theine, chocolate, medicinal herbs like garlic, curcumine, celery, strong peppers and others, amino acids and certain anti inflammatory; from one person to another and from one phase to another the elimination list during withdrawal may be small upto very long. We learn, evaluate, adjust and move on.

Thank you, I’m definitely going to have to make some changes.  I’ve been extremely nauseous the last few weeks and it’s getting worse.  I’m at the point where I don’t want to eat but I have to.  I have also felt fluish - sick, have a pain that goes up through my neck into my head and my head feels fuzzy/dizzy on and off, it’s awful.  This has just started recently. I feel like I’m getting worse and I’m so upset about it. 

[Schmeg82]

1 hour ago, Sebas said:

 

 

During withdrawal our CNS will respond to certain food ingredients as you have personally experienced twice lately. Lot of people on this website have been obliged to make quite drastic changes to their diet and elmininated several ingredients, things they ate or drank before, even things they put on their skin or use in the car or household. Here's a short list of things to avoid at dinner: caffein, theine, chocolate, medicinal herbs like garlic, curcumine, celery, strong peppers and others, amino acids and certain anti inflammatory; from one person to another and from one phase to another the elimination list during withdrawal may be small upto very long. We learn, evaluate, adjust and move on.

I’m actually getting worse, is there a chance that the drug has turned paradoxical on me? Or is this indicative of withdrawal? Even with reinstatement after 4 months? 

[Sebas]

During the last year your CNS has had a lot to deal with, going from 20mg to 5 mg in half a year, then reinstating 10 mg. Your dog died, you had several food interactions, it has all been heavy for your CNS to process. Things getting worse before they start to improve is indeed something we see more often. Or if there is a continuous trigger, that is not eliminated, this will happen too.

 

Before this started you were probably in poop-out so the drug has stopped its 100% efficacy. Extended holds during poopout can - under normal circumstances - worsen symptoms and then tapering is indicated, but yours is a different situation since you're stabilising after reinstatement. The safest way is too hold some longer, see how it develops in the next weeks/2 months, avoid possible triggers and restart taper when you feel more stabilised. In general time is our best friend.

 

Be aware if there's any triggers @work (chemicals, hairsprays, shampoos) to which you react badly. When CNS is hypersensitive these chemicals could suddenly become a trigger. 

 

Bye Sebas

[Schmeg82]

2 minutes ago, Sebas said:

 

Before this started you were probably in poop-out so the drug has stopped its 100% efficacy. Extended holds during poopout can - under normal circumstances - worsen symptoms and then tapering is indicated, but yours is a different situation since you're stabilising after reinstatement. The safest way is too hold some longer, see how it develops in the next weeks/2 months, avoid possible triggers and restart taper when you feel more stabilised. In general time is our best friend.

 

Am I stabilizing? This past month I’ve actually gotten worse (physical symptoms wise)  my vision issues are much worse, more flashing and can’t focus on things, makes me dizzy.  Light sensitivity is much worse also.  Nausea and dizziness worse and ears constantly ring.   But a lot of other symptoms have subsided as well, or gotten better, so I’m confused whether I’m stabilizing or not, or if I ever will.  Weird crawling sensations in my head are back that go up through my neck to head and make me dizzy/sick feeling also and i hadn’t had those since I was on the drug.  I will try and give it two more months, that would make 6 months of reinstating, and then start a slow taper? 

[Schmeg82]

8 minutes ago, Sebas said:

Be aware if there's any triggers @work (chemicals, hairsprays, shampoos) to which you react badly. When CNS is hypersensitive these chemicals could suddenly become a trigger. 

 

I haven’t noticed anything at work that has triggered any symptoms only the lighting in the salon and patterns of things, moving around and different lighting makes me nauseous and sick.  I can’t even go in the grocery store with the lights and shelves the way they’re set up makes me extremely dizzy.  It’s awful.  I’ve had my eyes checked 4 times now to make sure they’re okay.  So it’s definitely a processing issue.  

[Sebas]

11 minutes ago, Schmeg82 said:

But a lot of other symptoms have subsided as well, or gotten better, so I’m confused whether I’m stabilizing or not,

That's a positive straw. Give it more time and wait for more stability. 

[Schmeg82]

3 minutes ago, Sebas said:

That's a positive straw. Give it more time and wait for more stability. 

I will try my best to hold right now and pray my eyes get better so I can at least work more!  I can handle a lot of the other symptoms but my vision issues have been debilitating.  

[Sebas]

6 minutes ago, Schmeg82 said:

I will try my best to hold right now and pray my eyes get better so I can at least work more!  I can handle a lot of the other symptoms but my vision issues have been debilitating.  

I can very much relate to that. When your vision starts to improve you know that stabilisation is re occuring. Use it as a wd reference.

[Schmeg82]

Just now, Sebas said:

I can very much relate to that. When your vision starts to improve you know that stabilisation is re occuring. Use it as a wd reference.

Did you have the vision issues as well? Bless you! It’s horrible 

[LostInCanada]

@Schmeg82 just wanted to say it is so nice to see you jumping in and giving advice and encouragement to others. Glad you have been able to help despite dealing with your own issues. It helps reinforce ones own resolve I find. Thanks. ♥️🙏🤗

[Schmeg82]

47 minutes ago, LostInCanada said:

@Schmeg82 just wanted to say it is so nice to see you jumping in and giving advice and encouragement to others. Glad you have been able to help despite dealing with your own issues. It helps reinforce ones own resolve I find. Thanks. ♥️🙏🤗

It really makes me feel better to help others.  I’m no expert but I’m a good researcher and just trying to give positive advice based on my own experiences.  After 6 months of this it’s all I can do, I hate to see others going through this as well.  I know how hard it is especially in the beginning.  I’m so thankful for all your help as well as I still struggle.  

[Schmeg82]

Wanted to update my page again:

 

I just feel downright horrible, I’m in a terrible wave and it keeps getting worse, 4 weeks now.  Today I am very nauseous again, I have this awful feeling that comes up through my neck into the back of my head and then the nausea sets in, my whole head feels fuzzy/sick it’s hard to explain.  The positive thing is these feelings come and go throughout the day.  I’m not hungry at all but I have to force myself to eat or I feel even worse, it’s a loose loose situation right now.  I did get out and walk both dogs this morning in the sun before it got to hot and it felt nice to be outside walking but I was still feeling very off and slightly dizzy when I walk or look around.  Not sure if it’s a type of eye vertigo I have also but it’s not comfortable.  The light sensitivity hurts my eyes as well.  I don’t have prescription sunglasses yet unfortunately.  I did some sweeping, dusting and dishes and then made some eggs and felt pretty well and relaxed for a couple hours before another woozy/sick episode came on.  I decided I needed to eat again before my sugar dropped and I felt worse.  It’s strange how these symptoms come and go throughout the day, I guess I’m lucky they’re not constant! The back of my arms are tremoring again, not terribly but they haven’t done this in a long while.  I feel generally unwell like I’m coming down with something but I believe it’s all still withdrawal.  Getting some more rest now, going to try and nap.  

[Sebas]

3 hours ago, Schmeg82 said:

Wanted to update my page again:

 

I just feel downright horrible, I’m in a terrible wave and it keeps getting worse, 4 weeks now.  Today I am very nauseous again, I have this awful feeling that comes up through my neck into the back of my head and then the nausea sets in, my whole head feels fuzzy/sick it’s hard to explain.  The positive thing is these feelings come and go throughout the day.  I’m not hungry at all but I have to force myself to eat or I feel even worse, it’s a loose loose situation right now.  I did get out and walk both dogs this morning in the sun before it got to hot and it felt nice to be outside walking but I was still feeling very off and slightly dizzy when I walk or look around.  Not sure if it’s a type of eye vertigo I have also but it’s not comfortable.  The light sensitivity hurts my eyes as well.  I don’t have prescription sunglasses yet unfortunately.  I did some sweeping, dusting and dishes and then made some eggs and felt pretty well and relaxed for a couple hours before another woozy/sick episode came on.  I decided I needed to eat again before my sugar dropped and I felt worse.  It’s strange how these symptoms come and go throughout the day, I guess I’m lucky they’re not constant! The back of my arms are tremoring again, not terribly but they haven’t done this in a long while.  I feel generally unwell like I’m coming down with something but I believe it’s all still withdrawal.  Getting some more rest now, going to try and nap.  

These kinds of symptoms you get by taking zofran and paxil together. Just saying this to help, be more careful and consciously what you take or reaching CNS stability will only be further away. Do not underestimate effects of conflicting medication.

 

[Schmeg82]

33 minutes ago, Sebas said:

These kinds of symptoms you get by taking zofran and paxil together. Just saying this to help, be more careful and consciously what you take or reaching CNS stability will only be further away. Do not underestimate effects of conflicting medication.

 

I have not taken zofran in months, I did in the beginning and had no reactions.  But I’m also much worse now than I was before. This has been the hardest last few days for me as far as symptoms and I haven’t done anything out of the norm lately.  I’m getting discouraged that I will not heal even though I know I will.  I’m confused whether I should make a slight drop or not and see if it helps since I reinstated 4 months ago (on July 5th) and I’m getting worse.  😞

[Sebas]

7 hours ago, Sebas said:

I did some sweeping, dusting and dishes and then made some eggs and felt pretty well and relaxed for a couple hours before another woozy/sick episode came on.  I decided I needed to eat again before my sugar dropped and I felt worse.  It’s strange how these symptoms come and go throughout the day

If you feel pretty well even for a short period of time this means you are slowly recovering. If you feel worse after eating then evaluate what you eat/drank and adjust your diet. These symptoms change throughout the day cause a (hyper)sensitive CNS is triggered by lots of external sources. Considering you still have quite some destability symptoms a drop is likely to even further upset your CNS. Try to manage your daily routins, keep notes and then remove triggers for more stability. It's not just the medicine that creates windows and waves, its also the impact of our lifestyle.