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Rossho

Rossho: Risperdal taper

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Rossho

Hi there I am coming off risperdal. I know its tough but is it possible. I was really hoping to hear from alto strata on the matter. What speed should I start my taper at? Guys is there any hope? All im hearing are nightmare stories and im desperate for hope...

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SkyBlue
Posted (edited)

Hello Rossho and welcome to SA.

 

There definitely is hope. There are many, many people who have successfully come off this and similar drugs. The key is to do so as slowly as possible. 

 

Altostrata is the founder of this site; she has the most knowledge, but other moderators and members can offer support and experiences. You are in a great place for support.

 

Please be aware that there are a lot of nightmare stories out there. These are almost entirely from people who have come off too fast. If you are anything like me, I encourage you not to seek out such stories if at all possible. 

 

A request: Would you summarize your history in a signature using this link: Account Settings – Create or Edit a signature. 

Please include ALL drugs, doses, dates, and discontinuations & reinstatements, in the last 12-24 months particularly.

  • Please leave out symptoms and diagnoses.
  • A list is easier to understand than paragraphs. 
  • Please use actual dates or approximate dates (mid-June, Late October) rather than relative time frames (last week, 3 months ago)

This is your own Introduction topic where you can ask questions and journal your progress.

Edited by SkyBlue

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Rossho
8 hours ago, SkyBlue said:

Hello Rosho and welcome to SA.

There definitely is hope. There are many, many people who have successfully come off this and similar drugs. The key is to do so as slowly as possible. 

 

Altostrata is the founder of this site; she has the most knowledge, but other moderators and members can offer support and experiences. You are in a great place for support.

 

Please be aware that there are a lot of nightmare stories out there. These are almost entirely from people who have come off too fast. If you are anything like me, I encourage you not to seek out such stories if at all possible. 

 

A request: Would you summarize your history in a signature using this link: Account Settings – Create or Edit a signature. 

Please include ALL drugs, doses, dates, and discontinuations & reinstatements, in the last 12-24 months particularly.

  • Please leave out symptoms and diagnoses.
  • A list is easier to understand than paragraphs. 
  • Please use actual dates or approximate dates (mid-June, Late October) rather than relative time frames (last week, 3 months ago)

This is your own Introduction topic where you can ask questions and jo

 

 

Thsnk you skyblue I will do this. I have read that this site addvocates 10 % reductions a month or so. Is that considered slow enough? If I did 5% every 2 weeks would that be even safer? Im pretty scared to start this thing.

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Rossho

Hi all. Imade a bit of a mistake with regard to trying to get off of risperdal. My doctor told me it is easy to stop and that I could drop by 0.5mg a month. I made a terrible mistake of doing this till I got to 0.5mg. I began to have a withdrawal effect 2 weeks after getting to 0.5. I panicked and jumped back up to just 1mg where I have held for about 2 months. I have some discomfort still after 2 months and found this webpage. Mainly I pace a lot and have heightemed anxiety. Would it be advizeable to jump back up to 1.5 mg to see if I settle before tapering the correct way or is that dsngerous? Should I just continue to taper where I am. The discomfort is definitely not improving. Although I do have windows every night and sometimes during day where I feel 100 percent normal.

 

Im really looking for hope. Have I now damaged my nervous system and ruined any chance of me successfully tapering off? If I go back up to 1.5 is there a kindling risk similar to updosing benzos. Please guys im really anxious about thisand just want off the risperdal.

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Rossho

As a side note when updosing to 1 mg the symptoms did fade mostly. I had dp/dr and a rushing feeling in my chest which went away. Now considering a jump back up to 1.5.

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SkyBlue

Hi Rossho, you're welcome, and thanks for adding a signature. 

 

Yes, we suggest a maximum of 10 per cent per month, and slower can definitely be better and more gentle. People also find it valuable to hold at a certain dose for a while, to give their systems a chance to stabilize. 

 

It makes sense to be scared about doing a taper--it's a big deal. But it is doable, and you are in such a good position, preparing yourself ahead of time. Many or even most of us unknowingly went way too fast and are paying the price. Your prospects are good! 

 

You might find this helpful as a popular method devised by our own Brassmonkey, doing very small cuts to equal approximately 10% per month (similar to your thought of doing two 5% cuts): http://survivingantidepressants.org/topic/17671-the-brassmonkey-slide-method-of-micro-tapering/

 

Let us know what you decide, and keep letting us know how you're doing. : ) 

 

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mammaP

Hi Rossho, welcome to SA. I have moved your topic to the introductions forum, this will be your  topic to update and ask questions about your taper. 

 

It is very promising that you are having windows when you feel 100% normal.  I would hold with 1mg, increasing could actually cause problems after being on a lower dose.  After all the drugs and changes it will not be just risperdal withdrawal that you are experiencing but benzo withdrawal too. Can you tell us about your symptom pattern?  When do you start feeling better, and worse. When do you take the risperdal, and the celexa?  This will help us to see whether it is withdrawal or reaction.  I do suspect benzo withdrawal is present, and increasing the risperdal will not help with that.  You could start a topic for yourself in the benzo section too. You need to get some advice on the benzo, and hold the risperdal. Ypour nervous system needs to settle down and holding is the way to do that. When you are stable you can then start to think about tapering slowly. We can help you with that but for now it's important not to change anything. 

 

Thank you for creating your signature, it is very helpful but it says you are taking 1.5 risperdal, could you change that to the 1mg for us, you can change it to 1.5 if you do updose. 

 

I will find some links for you that will help you to understand what is happening. 

 

What is withdrawal syndrome

http://survivingantidepressants.org/index.php?/topic/603-what-is-withdrawal-syndrome/

 

Windows and waves pattern of stabilisation

http://survivingantidepressants.org/index.php?/topic/82-the-windows-and-waves-pattern-of-stabilization/

 

This excellent post by Rhiannon explains perfectly how the drugs remodel your brain and what happens when we come off those drugs. 

http://survivingantidepressants.org/topic/1160-how-psychiatric-drugs-remodel-your-brain/

 

And about tapering. When you are ready you can research the topics on tapering to find a wealth of information about the drugs you wish to taper

 

http://survivingantidepressants.org/topic/300-important-topics-in-the-tapering-forum-and-faq/

 

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Rossho

Hi there mammP. My symptom pattern is like clockwork. I wake up in the morning with extremely restless legs and anxiety/dread. Then I have to get out of bed and move around a bit. I take my risperdal and celexa at 8:45am. for the rest of the day the anxiety continues and I need to pace a bit, however on some days the pacing kinda cools down around 11. Normaly I feel pretty agitated and anxious till the sun goes down around 6 to 7 pm and then I begin to feel normal again. I then take my nightly risperdal dose at 8:45pm (thats 0.5mg in the morning and 0.5mg at night). Im fine for the rest of the night. Then I go to sleep at around 10 and wake up every morning around 3:30am with the restlessness and anxiety/dread. I also figure its not smart to updose but I cant tell what is from the big risperdal drop I made and what is benzo withdrawal. Keep in mind that i always felt like this to some extent even when on the benzos and risperdal because I was reinstated onto the benzos 8 months ago and never stabalized. However the pacing and anxiety I would say has increased. I fear that if I keep holding and the risperdal drop is the culprit that I might never stabalise if that drop was too big to begin with and I just want off this stuff. The risperdal itself im sure is contributing to the restlessness just from being on it.

 

Do people in my position even have a chance of succeeding? I feel so afraid and lost. And I feel like I wont stabalize as im definitely not improving, besides the window I have every single night where I feel absolutely perfect. I dont have the option of reinstating the benzo as I have had a previous withdrawal and am definitely kindled. Im also scared that I wont stabalize if its benzo withdrawal as the pther drugs might be interfering with healing.

 

Thank you for your response...

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Altostrata

Hello, Rossho, I combined your topics into this main topic, where you can ask questions about your taper and track your progress.

 

On 5/14/2018 at 11:17 PM, Rossho said:

As a side note when updosing to 1 mg the symptoms did fade mostly. I had dp/dr and a rushing feeling in my chest which went away. Now considering a jump back up to 1.5.

 

^The symptoms faded, then got worse so you updosed Risperdal? When did this happen, what were the symptoms? Did the updose help?

 

How did you go off Valium? Did your symptom pattern change when you stopped Valium? How's your sleep?

 

What times of day do you take your drugs, and at what dosages?

 

Please put ALL your drugs in the Drug Interactions Checker https://www.drugs.com/drug_interactions.php
and copy and paste the results in this topic.

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Rossho

Hi alto,

I was reinstated onto benzos about 8 months ago but they did not work this time and the whole time I was on I had terrible anxiety, fear, and depersonalisation, I also hadto pace a lot but had no physical symptoms etc. I was also put on risperdal at the same time and later the celexa. Because I wasnt stabalizing I decided I had to come off the benzos again and in a knee jerk reaction I entered a treatment faciliity where they first updosed me from 30 mg valium to 50 mg equivalent of a different benzo called urbanol. I just say valium because nobody seems to know urbanol but it also has a long half life. There they cut me down to about 20 mg valiumequivalent over 3 weeks and my suicidality and dp/dr got so bad they had to stop. I stayed on the 20 mg equivalent for about 2 months and then dropped myself down to about 15 mg equivalent, then 10 mg. From there I was pressured into a medical detox where they then took me off the last amount over the space of 5 days. In other words I was on the benzos for about 5 montgs during which I very messily came off in a stepped fashion in a poorly planned way. A little while before going into the final medical detox I decided I wanted to try come off the risperdal fast as possible before totaly coming off the benzos. My doctor said it would be easy so I first dropped the risperdal from 1.5 mg to 1 mg. Then while in the final benzo detox I quickly jumped down to 0.5 mg risperdal. It was at this stage while in the hospital I started to get bad dp/dr again as well as a rushing feeling in my chest. Its important to note that prior to this during my few month hold of the 20 mg valium equivalent that the dp/dr had completely gone away until I tried to cut the risperdal. Because I had bad symptoms cutting the risperdal I uped the dose back to 1mg risperdal 2 weeks after going to 0.5. This updose ocurred 2 months ago ight before tsking my last benzo.This cleared up the rushing feeling as well as the dp/dr. What im stuck with now is essentially anxiety, depression, akathesia or need o move aroubbdnd (inner restlessness) and suicidal ideation still no physical symptoms from jumping off the benzos. Although im bad I never went into a full on brutal benzo withdrawal and im 2 months out now. I can only imagine the other drugs im on are masking it but I do not know. Im not sure if its a good sign or a bad sign that I havent gone into a full blown acute withdrawal. I am stilll on 1 mg risperdal I will change my signature to state this. My symptoms start early in the morning when I wake up at about 3:30. To 4 am with restless legs, anxiety, and the need to pace. It normaly stays this way all day sometimes easing up around 11am a little and getting worse again around 3 pm. By 6 to 7 pm the symptoms start to lift and go away completely when the sun is down and I feel 100 percent myself no symptoms. In this state I dont want to die anymore and get filled with hope. But when I wake up in the morning it all floods back in. I take the risperdal and celexa at about 8:45 every morning and I take only the risperdal again at 8:45 pm. Thats 0.5mg in the morning and 0.5mg at night. The celexa dose is 20mg.

 

My anxiety and pacing I think have been pretty consistent throughout being on the benzos and risperdal carrying on till after I jumped off the benzos. Perhaps just getting a little worse since jumping.I guess the best way to describe it is that towards the end of the benzo taper the need to walk around became a bit more of a compulsion, like an inner restlessness. Again I cant say I have gotten much worse even after jumping off the benzos and I dont know why. You know what its like with symptoms you forget if its gotten worse or better or whatever. All I know is im super uncomfortable most of the day. The need to walk around akathesia iin guess is not consistent throughout the day. It does ease up and change at different times of day no definite pattern besides everything getting slightly easier towards middle of day.

 

As far as symptom patterns changing since jumping from the benzos im not sure... there were times towards the wnd of the benzo cutting that I was being woken with the restlessness and need to pace. But id say that compulsion occured mostly towards end and has persisted. Another symptom which started towards the end was sleep issues. I was waking up at 1:30 every morning and then agsin at 3:30 am. This all mostly started towards end and has persisted. It got better for a while shortly after jumping but is bad again. Thats not to say I never had sleep issues early on in this. I guess throughout being back on the benzos there were stages when this would happen for example when I went into the first treatment centre and they dropped me from 50mg valium equivalent to 20 I was waking up early hours and needing to pace. So maybe I should attribute this to the benzos rsther than risperdal im not sure. I probably get around 4 to 5 hours of sleep now. Last night I think I got 4 if im lucky.

 

Does any of this info even help, it seems confusing even too me because id say I have had pretty consistently confusing symptoms all while being back on the benzos and while being off. They have just changed and shifted slightly. One thing that has improved is the detschmwnt or. Dp/dr. This was bad from when I did my first big drops in the first treatment centre way back when I went from 50mg valium equivalent to 20 mg valium equivalent but got better from there and has gone away. I do wonder whether being put on the celexa helped with that as id say it started to get better from when I was put on that. When the dp/dr and suicidality got too bad in the treatment centre and they stopped my taper back in december thats when they put me on the celexa. I have no dp/dr now, besides the short burst I had when I tried to cut the risperdal which has gone due to updose. 

 

Is this just all too confusing? Interestingly I have wojen up this morning with no symptoms. Do I really have to be 100 percent stable before starting a very slow risperdal taper? I feel like I dont want to wait as I dont feel that I will stabalise and do wonder how much of my restlessness is from the risperdal. Sorry for the long pist. If its too confusing please ask me again as I am so desperately intrrested in your advice. Thsnks for being so patient.

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SkyBlue
12 hours ago, Rossho said:

Do I really have to be 100 percent stable before starting a very slow risperdal taper? I feel like I dont want to wait as I dont feel that I will stabalise and do wonder how much of my restlessness is from the risperdal. Sorry for the long pist. If its too confusing please ask me again as I am so desperately intrrested in your advice. Thsnks for being so patient.

 

I'm not able to read your entire post right now, but as far as being stable before a slow taper: it's really up to you. The idea would be to be as stable as possible (not perfect, but pretty stable) before starting, with tolerable, predictable symptoms, and go as slowly as possible. 

 

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Altostrata

Hello, Rossho.

 

23 hours ago, Rossho said:

I take my risperdal and celexa at 8:45am. for the rest of the day the anxiety continues and I need to pace a bit, however on some days the pacing kinda cools down around 11. Normaly I feel pretty agitated and anxious till the sun goes down around 6 to 7 pm and then I begin to feel normal again. I then take my nightly risperdal dose at 8:45pm (thats 0.5mg in the morning and 0.5mg at night). Im fine for the rest of the night. Then I go to sleep at around 10 and wake up every morning around 3:30am with the restlessness and anxiety/dread.

 

Those early morning symptoms sound like you're sensitive to the natural jump in cortisol, which is triggered by sunrise. Keeping your bedroom very dark with blackout shades and curtains and wearing a sleep mask may reduce that reaction.

 

Why are you taking risperidone and Celexa at the same time in the morning? They could be conflicting. Please put ALL your drugs in the Drug Interactions Checker https://www.drugs.com/drug_interactions.php and copy and paste the results in this topic.

 

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Rossho

Using citalopram together with risperiDONE can increase the risk of an irregular heart rhythm that may be serious and potentially life-threatening, although it is a relatively rare side effect. You may be more susceptible if you have a heart condition called congenital long QT syndrome, other cardiac diseases, conduction abnormalities, or electrolyte disturbances (for example, magnesium or potassium loss due to severe or prolonged diarrhea or vomiting). Talk to your doctor if you have any questions or concerns. Your doctor may already be aware of the risks, but has determined that this is the best course of treatment for you and has taken appropriate precautions and is monitoring you closely for any potential complications. You should seek immediate medical attention if you develop sudden dizziness, lightheadedness, fainting, shortness of breath, or heart palpitations during treatment with these medications, whether together or alone. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

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Rossho

Alto I also want to ask you. When cutting my 5 or 10 percent each month or so, is that 10 percent of the starting dose? Or 10 percent of the latest dose. If it were to be latest dose then to taper 1 mg of medication could take me in excess of a year and a half to 2 years? That cant be right. I know you are probably very busy but could you maybe explain that to me? I just dont want to do this wrong. 

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mammaP

Hi Rossho, the 10% is the current dose. It does take time but it reduces the risk of withdrawal and sneaks the drug away from the brain, allowing it to adjust between drops. Don't be put off because of the time it takes, you have your whole life ahead of you. Tapering faster will see you  bouncing around on and off the drugs for many years, trying to stop withdrawal. Believe me I know, I did it for 20 years and could never understand why I was so sick. If you hold for a while now, then do a slow taper you will can feel better as the dose lowers.  Because of the changes and jumping off benzos I would hold your doses for a few months so you are more stable when you start tapering.  

It might be better for you to move the celexa dose away from the rispardal so they aren't taken together.    Do you have any heart problems? 

 

http://survivingantidepressants.org/topic/1024-why-taper-by-10-of-my-dosage/

 

Edited by mammaP
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